自闭的感官特征、性和关系叙述。

Sarah Gray, Anne V Kirby, Laura Graham Holmes
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Despite wanting to participate, people with sensitivities described negative reactions to many of the sights, sounds, smells, and textures that were involved in dating and sexual activities. Other people indicated that they avoided sexual activity because of their sensory features. However, we also found that some autistic people seek out more intense sensations in their sexual activities, and others that enjoy intimacy that promotes calming and self-regulation. People wrote about strategies they use in response to their autistic sensory features, such as communication with partners and the use of substances to dull sensations.<b>What do these findings add to what was already known?:</b> There has not been much published research on this topic, so this study is a starting place. In books, as well as in online discussion boards, autistic people have been discussing the importance of sensory features to their sexuality and relationships. 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引用次数: 4

摘要

背景:关于自闭症患者的性和亲密体验的研究在很大程度上排除了自闭症感官特征的潜在影响,这是非常常见的。本研究的目的是探讨自闭症的感觉特征如何影响自闭症患者的性体验和人际关系,包括低阈值和高阈值的感觉模式以及特定的感觉模式的影响。方法:采用定性方法,我们通过现有的公开叙述(5本书和13个包含72个独特用户名的在线论坛)和对开放式调查问题(N = 49)的回答,探讨了自闭症患者关于感官特征对他们的性和关系体验的影响的观点。我们使用了基于Dunn的感觉处理模型的演绎编码,以及归纳编码来识别关于自闭症感官特征和性的其他主题。结果:我们的研究结果表明,性和关系经历与感觉敏感性和感觉寻求(即低阈值和高阈值感觉模式)有关,涉及几种感觉模式,包括触觉、视觉、声音和嗅觉。感官特征以积极和消极的方式影响自闭症患者的性和关系体验。研究的叙述揭示了自闭症患者用来增强或促成性活动的适应和策略,以及对他们性身份的影响。结论:自闭症患者的感官特征及其对性和关系体验的影响应在临床实践和教育规划中予以考虑。需要更多的研究来进一步了解自闭症的感官特征对性和关系体验的影响,并制定有效的策略来促进安全和满意的参与,当需要时。Lay summary:为什么要做这项研究?自闭症患者对感觉的反应通常与其他人不同,包括对感觉更敏感和/或想要更强烈的感觉(在本研究中称为“自闭症感觉特征”)。性和关系的许多方面都涉及到感官输入。然而,我们对自闭症的感官特征如何影响自闭症患者的性行为和人际关系知之甚少。这项研究的目的是什么?本研究的目的是探讨自闭症的感官特征如何影响自闭症患者的性体验和人际关系。研究人员做了什么?在这项研究中,我们使用了两种不同的数据来源。第一种是现有的由自闭症患者写的公开的东西,包括书籍和在线论坛上的帖子。第二项是关于自闭症的感官特征和性行为的问卷调查。总的来说,我们看了120多名自闭症患者写的东西。我们回顾了所有的信息,以探索他们写了什么样的感觉反应(例如,敏感性和感觉寻求)和感觉模式(例如,触觉、视觉、声音和气味)。我们也更广泛地观察了自闭症患者如何描述自闭症的感官特征对他们的性行为和关系体验的影响。研究的结果是什么?我们的研究结果表明,在我们获取的信息中,自闭症患者确实写下了感官特征如何影响他们的性和关系体验。一些感觉敏感的人描述了对性经历的困惑、痛苦和沮丧。尽管想要参与,但敏感的人描述了对约会和性活动中涉及的许多景象、声音、气味和质地的负面反应。其他人表示,他们避免性行为是因为他们的感官特征。然而,我们也发现一些自闭症患者在他们的性活动中寻求更强烈的感觉,而另一些人则喜欢通过亲密关系来促进平静和自我调节。人们写下了他们用来应对自闭症感官特征的策略,比如与伴侣交流,以及使用药物来麻痹感觉。这些发现对已知的知识有什么补充?目前关于这一主题的研究还不多,所以这项研究是一个起点。在书中以及在线讨论区,自闭症患者一直在讨论感官特征对他们的性行为和人际关系的重要性。我们获取了这些信息,并使用理论和临床经验来分析他们的作品,并帮助确定需要进行哪些其他研究。研究中有哪些潜在的弱点?在这项研究中,我们使用了自闭症患者已经写的文字和对一个调查问题的回答。 因此,我们可能还没有完全理解自闭症的感官特征是如何影响性和关系体验的。这些发现将如何帮助现在或将来的自闭症成年人?这项研究有助于更好地理解自闭症特征如何影响自闭症患者的性行为和人际关系。这些信息可以用来为自闭症患者、家庭和服务提供者开发有效的教育和资源。
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Autistic Narratives of Sensory Features, Sexuality, and Relationships.

Background: Research about the experience of sexuality and intimacy for autistic people has largely excluded the potential influences of autistic sensory features, which are highly common. The aim of this study was to explore how autistic sensory features influence autistic people's experiences of sexuality and relationships, including the impact of low and high neurological threshold sensory patterns and regarding specific sensory modalities.

Methods: Utilizing a qualitative approach, we explored autistic people's perspectives about the influences of sensory features on their experiences of sexuality and relationships through existing publicly available narratives (5 books and 13 online forums containing messages from 72 unique usernames) and responses to an open-ended survey question (N = 49). We used deductive coding based on Dunn's model of sensory processing, as well as inductive coding to identify additional themes about autistic sensory features and sexuality.

Results: Our findings indicated that sexual and relationship experiences were related to both sensory sensitivity and sensation seeking (i.e., low and high threshold sensory patterns) across several sensory modalities, including touch, sight, sound, and smell. Sensory features influenced autistic people's sexual and relationship experiences in both positive and negative ways. Examined narratives revealed adaptations and strategies used by autistic people to enhance or enable engagement in sexual activity as well as implications for their sexual identity.

Conclusions: Sensory features and their impact on the sexuality and relationship experiences of autistic people should be considered in clinical practice and educational programming. More research is needed to further understand the impact of autistic sensory features on experiences of sexuality and relationships, and to develop effective strategies to promote safe and satisfying engagement, when desired.

Lay summary: Why was this study done?: Autistic people often respond to sensations differently than other people, including being more sensitive to sensations and/or wanting more intense sensations (called "autistic sensory features" in this study). Many aspects of sexuality and relationships involve sensory input. However, we do not know much about how autistic sensory features influence sexuality and relationships for autistic people.What was the purpose of this study?: The purpose of this study was to explore how autistic sensory features influence autistic people's experiences of sexuality and relationships.What did the researchers do?: For this study, we used two different sources of data. The first was existing publicly available things written by autistic people, including books and posts on online forums. The second was answers provided on a survey question asking about autistic sensory features and sexuality. Overall, we looked at things written by over 120 autistic people. We reviewed all the information to explore what kinds of sensory responses (e.g., sensitivities and sensation seeking) and sensory modalities (e.g., touches, sights, sounds, and smells) they wrote about. We also looked more generally to see how autistic people described the ways that autistic sensory features influenced their sexuality and relationship experiences.What were the results of the study?: Our findings show that in the information we accessed, autistic people did write about how sensory features influence their sexual and relationship experiences. Some people who have sensory sensitivities described confusion, distress, and frustration with sexual experiences. Despite wanting to participate, people with sensitivities described negative reactions to many of the sights, sounds, smells, and textures that were involved in dating and sexual activities. Other people indicated that they avoided sexual activity because of their sensory features. However, we also found that some autistic people seek out more intense sensations in their sexual activities, and others that enjoy intimacy that promotes calming and self-regulation. People wrote about strategies they use in response to their autistic sensory features, such as communication with partners and the use of substances to dull sensations.What do these findings add to what was already known?: There has not been much published research on this topic, so this study is a starting place. In books, as well as in online discussion boards, autistic people have been discussing the importance of sensory features to their sexuality and relationships. We accessed that information, and used theory and clinical experience to analyze their writings and help identify what other research is needed.What are potential weaknesses in the study?: We used text already written by autistic people and responses on one survey question for this study. Therefore, we may not have gained a complete understanding of the ways that autistic sensory features influence sexuality and relationship experiences.How will these findings help autistic adults now or in the future?: This study contributes to greater understanding of how autistic traits affect sexuality and relationships for autistic people. That information can be used to develop effective education and resources for autistic people, families, and service providers.

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