痴呆

P. Chung, T. Vella-Burrows
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引用次数: 0

摘要

背景:在痴呆症患者的主要照顾者(表示对帮助其亲属负有最大责任的个人)中,超过一半的人照顾他们的父母。大多数照顾者(66%)与被照顾者一起生活在社区中(Fisher, et al., 2011)。照顾痴呆症患者的责任往往落在女性身上(Kasper et al., 2015)。男性在有关痴呆症家庭护理的文献中代表性不足。然而,他们在为社区中认知受损的老年人提供护理方面发挥着重要作用(Houde, 2001)。虽然有大量关于痴呆症护理的文献,但只有少数研究强调了男性的护理作用(Coe & Neufeld, 1999;克莱默,2000;Russell, 2007a, 2007b)。方法:采用元民族志方法。五个电子书目数据库被用来检索从1997年到2021年发表的研究,这些研究探讨了儿子照顾者照顾患有阿尔茨海默病的父母的经历。根据合格标准,最后纳入了五项定性研究。结果:在儿子的经历中出现的共同主题包括失落感、压力和忍受照顾之旅。孙正义的照顾角色包括病例管理员、疾病教育者、家庭有偿帮助以及处理兄弟姐妹之间的冲突。两项研究显示了积极的结果。结论:本综述提供了更深入的了解儿子照顾者照顾阿尔茨海默病父母的经验。研究结果可以帮助医疗保健提供者制定和实施针对儿子照顾者需求的量身定制的干预措施。
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Dementia
Background: Among primary caregivers (individuals who indicate having the most responsibility for helping their relatives) of people with dementia, over half take care of their parents. Most caregivers (66 percent) live with the care recipient in the community (Fisher, et al., 2011). The responsibilities of caring for someone with dementia often fall to women (Kasper et al., 2015). Men are underrepresented in the literature pertaining to family caregiving in dementia. Yet, they play an important role in provid-ing care for cognitively impaired older adults in the community (Houde, 2001). While there is extensive literature on caregiving in dementia, only a few studies have empha-sized the caregiving role of men (Coe & Neufeld, 1999; Kramer, 2000; Russell, 2007a, 2007b). Method: We employed the meta-ethnography methodology. Five electronic bibli-ographic databases were used to retrieve studies published from 1997-2021 that explored son caregivers’ experiences of caring for a parent with Alzheimer’s Disease. Five qualitative studies were finally included for the synthesis, based on the eligibility criteria. Result: Common themes that emerged in the son’s experiences include a sense of loss, stress, and enduring the caregiving journey. Son’s caregiver roles included case man-ager, disease educator to in home paid help, and coping with sibling conflicts. Two studies showed positive outcomes. Conclusion: This review provides a deeper understanding of son’s caregivers’ experiences of caring for a parent with Alzheimer’s Disease. The findings can help healthcare providers in the development and implementation of tailored interventions specific to son’s caregiver needs.
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