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引用次数: 5

摘要

围绕人类基因组计划(HGP)存在许多争议。一些批评是基于这样的论点:完整的人类序列在科学上毫无价值;另一些则源于对基因检测和个人基因信息泄露的社会影响的短期担忧。我认为,如果正确理解的话,人类基因组计划是一个有价值的科学项目,但它的名称具有误导性,围绕短期困难的道德问题相对简单,但在实施显而易见的解决方案时,存在实际政治问题。最后,我建议人类健康计划提供一个机会,让我们就改善人类生活质量的承诺提出更深层次的哲学问题。
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Who's Afraid of the Human Genome Project?
There are a number of controversies surrounding the Human Genome Project (HGP). Some criticisms are based on the contention that the full human sequence will be scientifically worthless; others stem from short-term worries about the social impact of genetic testing and the release of genetic information about individuals. I argue that, properly understood, the HGP is a valuable scientific project with a misleading name, that the moral issues surrounding the short-term difficulties are relatively straightforward but that there are problems of practical politics in implementing the obvious solutions. Finally, I suggest that the HGP serves as the occasion for raising deeper philosophical questions about our commitment to improve the quality of human lives.
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