污染血液丑闻对下一代的影响:证据的状态

Sally-Anne Wherry, Liz Berragan, Ros Jennings
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引用次数: 0

摘要

污染(或污染)血液丑闻是一个世界性的事件,感染了许多人,包括血友病患者(PwH),血液传播疾病。这对涉及的家庭产生了重大的心理影响,以及身体和经济上的损失。虽然一些研究集中在那些直接受影响的人- PwH,他们的家庭和社区-但对代际影响知之甚少。这篇叙述性评论探讨了受污染血液影响的PwH儿童的影响,表明对家庭经历的理解存在重大差距。
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The impact of the Contaminated Blood Scandal on the next generation: the state of the evidence
Abstract The Contaminated (or Tainted) Blood Scandal was a worldwide event that infected many people, including people with haemophilia (PwH), with blood-borne diseases. This has had a significant psychological impact on the families involved, alongside the physical and financial toll. Although some studies have focused on those directly affected – PwH, their families, and the community – very little is known about the intergenerational impact. This narrative review explores the impact on the children of PwH affected by the contaminated blood, demonstrating a significant gap in the understanding of the families’ experiences.
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Living, Caring, Learning – The treatment centre as family for a woman with severe haemophilia Living, Caring, Learning – Reflections on the therapeutic relationship in haemophilia care Future Care Pathways – A report from the 1st workshop of the EHC Think Tank Workstream on Future Care Pathways The impact of the Contaminated Blood Scandal on the next generation: the state of the evidence Editorial – Living, Caring, Learning: How patients shape the specialist haemophilia nurse
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