社会经济地位与家庭结构:女性照顾者应对尘肺病家庭的质性调查

Yiwen Zhu
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引用次数: 1

摘要

. 尘肺病是中国最常见的职业病。在中国的学术和媒体话语中,患有职业病的农民工几乎被一致地描述为无助和脆弱。虽然这在许多情况下是正确的,但这项研究呼吁人们注意社会经济地位和家庭结构在形成尘肺病工人及其女性照顾者的不同经历中的作用。通过对中国福建省、陕西省和河南省的19名尘肺患者及其家庭成员的定性访谈,我发现社会经济地位不仅影响个体患者所能接受的治疗类型,而且影响其妻子的应对策略和对疾病的态度。在社会经济地位较高的尘肺患者中,患者乐观地等待肺移植手术,而他们的妻子则成为家庭的经济支柱,同时照顾他们。然而,在社会经济资源较少的家庭中,丈夫预期死亡,妻子要么再婚,要么成为唯一的养家糊口者。后者也更有可能对死亡持悲观态度。本研究通过强调尘肺病在个人和家庭层面结果的社会经济梯度,扩展了中国现有的职业病文献。
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Socioeconomic Status and Family Structure: A Qualitative Investigation of Female Caregivers in Families Coping with Pneumoconiosis
. Pneumoconiosis is the most prevalent occupational illness in China. In Chinese scholarship and media discourse, migrant workers with occupational illness are almost uniformly described as helpless and vulnerable. While this is true in many cases, this study calls attention to the roles of socioeconomic status and family structure in shaping the differential experiences of workers with pneumoconiosis and their female caregivers. Using qualitative interviews with 19 Pneumoconiosis patients from the Fujian, Shaanxi, and Henan Province in China and their family members, I show that socioeconomic status affects not only the type of medical treatment the individual patients can receive but also their wives’ coping strategies and attitudes towards the illness. Among pneumoconiosis patients with higher socioeconomic status, the patients optimistically await lung transplant surgeries, while their wives become bread-winners of the family and at the same time provide care for them. In families of less socioeconomic resources, however, husbands expect death and wives either remarry or become the only breadwinner. The latter group is also more likely to hold a pessimistic attitude toward death. This study extends the existing literature on occupational disease in China by highlighting the socioeconomic gradient in individual and family-level outcomes in the face of pneumoconiosis.
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