全盘同意——“研究的安全毯”

NG Bhuvaneshwari, R. Savithramma, L. Nagesh
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引用次数: 0

摘要

每个人都有权作出有关健康的决定。知情同意仅涵盖已知的样本/模型/标本用途。因此,由于遗传信息的复杂性,这不能被视为纯粹的知情同意。全面同意意味着对同意的范围和期限没有限制。这只能给一次,但包括同意在未来任何时候使用样本。这对于科学研究尤其重要,因为新项目或实验可能在受试者同意并存放标本/模型等多年后才被设计出来。然而,有可能滥用资料/样本,并有可能违反隐私和保密。
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Blanket consent - “The safety blanket for research”
Every individual has the right to make decisions concerning health. Informed consent covers only known uses of samples/models/specimens. Hence, that cannot be considered purely informed consent because of complexity of genetic information. Blanket consent implies that there are no restrictions to the scope and duration of the consent. Which is given only once, but includes consent for any use of the samples at any time in the future. It is particularly important for scientific research in which new projects or experiments might be devised years after the subjects have given their consent and deposited their specimens/models etc. However, there are chances of misuse of information/specimen and there may be a breach of privacy and confidentiality.
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