个人健康监测的伦理含义

B. Mittelstadt
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引用次数: 45

摘要

个人健康监测(PHM)使用电子设备在医院外(通常在家中)监测和记录与健康有关的数据。本文探讨了PHM提出的伦理问题。通过对68篇关于PHM的学术文章的回顾,确定了描述PHM伦理含义的八个主题。确定的主题包括隐私、自主、突兀性和可见性、耻辱和身份、医疗化、社会孤立、提供护理以及安全和技术需求。围绕这些问题进行了讨论。哈贝马斯的系统/生活世界视角被应用于发展对PHMs作为制度和国内环境之间沟通的调解人的角色的理解。此外,在伦理问题之间建立了联系,以证明PHM的伦理涉及一个复杂的伦理相互作用网络。这篇论文扩展了对PHM对患者身份的关键影响的讨论,并得出结论,对PHM周围伦理问题的全面理解将有助于研究人员和从业者开发有效的PHM实施
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The Ethical Implications of Personal Health Monitoring
Personal Health Monitoring (PHM) uses electronic devices which monitor and record health-related data outside a hospital, usually within the home. This paper examines the ethical issues raised by PHM. Eight themes describing the ethical implications of PHM are identified through a review of 68 academic articles concerning PHM. The identified themes include privacy, autonomy, obtrusiveness and visibility, stigma and identity, medicalisation, social isolation, delivery of care, and safety and technological need. The issues around each of these are discussed. The system / lifeworld perspective of Habermas is applied to develop an understanding of the role of PHMs as mediators of communication between the institutional and the domestic environment. Furthermore, links are established between the ethical issues to demonstrate that the ethics of PHM involves a complex network of ethical interactions. The paper extends the discussion of the critical effect PHMs have on the patient's identity and concludes that a holistic understanding of the ethical issues surrounding PHMs will help both researchers and practitioners in developing effective PHM implementations.1
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