管理重症肌无力的挑战:国际视角

C. Barnett, Fatmah Alzahmi, Dong Dong, Jeannine Heckman, V. Salutto, H. Shin
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引用次数: 0

摘要

在过去的几十年里,重症肌无力的诊断和治疗有了越来越多的突破。然而,大多数已发表的关于肌无力的研究都是在发达地区进行的,比如美国、加拿大和欧洲。这些地区面临的挑战可能与世界其他地区不同,通常资源较少,例如神经科医生较少,获得重症肌无力专门检测的机会有限或没有机会,以及获得某些干预措施的机会有限。在第14届重症肌无力和重症肌无力疾病国际会议期间,我们组织了一个由神经学家和研究人员组成的小组,他们与世界不同地区的重症肌无力患者一起工作。其目标是激发围绕共同挑战以及特定领域的挑战的讨论。最终,我们的目标是发展临床医生网络,照顾世界各地的重症肌无力患者,以改善患者的护理。我们将按地区使用案例格式对挑战进行总结,并围绕常见思路和可能的后续步骤进行讨论。
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Challenges managing myasthenia gravis: an international perspective
There have been increasing breakthroughs in the diagnosis and treatment of myasthenia gravis over the past decades. However, most published research in myasthenia is conducted in developed regions, such as the US, Canada and Europe. The challenges faced in these regions may be different from other areas of the world, often with fewer resources, such as fewer neurologists, limited or no access to specialised testing for myasthenia, and limited access to some interventions. During the 14th International Conference for Myasthenia Gravis and Myasthenic Disorders, we organized a panel of neurologists and researchers who work with people living with myasthenia in different world regions. The goal was to stimulate discussion around common challenges as well as those that are specific for given areas. Ultimately, we aimed to develop networks of clinicians caring for people living with myasthenia gravis around the world, to improve patient care. We present a summary of challenges using a case format by region, and a discussion around common threads and potential next steps.
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