基因改造的运动员:基因革命中的人权

A. Miah
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引用次数: 14

摘要

基因革命的特点是一系列伦理和社会问题,这些问题正在引起众多学科的关注。其中最重要的是关于人类基因组的知识将如何影响人权的应用。越来越明显的是,常规人权不能适当地保护由于大量新的和有前途的遗传技术而出现的新人类。此外,由于这种技术,人类物种的神圣性常常被认为受到威胁。联合国教育、科学及文化组织最近起草的《世界人类基因组与人权宣言》明确表明了这一点的重要性。在本文件中,教科文组织敦促在应用这种技术时尊重人的尊严,并确保保护个人不受基因工程可能产生的遗传歧视等影响。此外,新兴文献正在努力解决如何在基因工程时代维持人权。最值得注意的是,这一论述是由Justine Burley最近编辑的文本提供的,其中包括1998年牛津大学大赦国际的讲座。然而,这种情况仍然是一个道德雷区,如果基因技术要获得任何形式的合法性,就必须通过这个雷区。
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The engineered athlete: Human rights in the genetic revolution
The genetic revolution is characterized by a host of ethical and social issues that are drawing attention across a multitude of disciplines. Not least of these is how knowledge about the human genome will impact upon the application of human rights. It is becoming increasingly apparent that conventional human rights do not suitably protect the new kinds of human that are emerging as a result of a plethora of new and prospective genetic techniques. Moreover, the very sanctity of the human species is often deemed to be under threat as a result of such technology. The significance of this is made explicit in the recently drafted Universal Declaration on the Human Genome and Human Rights by the United Nations Educational, Scientific, and Cultural Organization. Within this document, UNESCO urges for the application of such technology to respect human dignity and to ensure the protection of individuals from such effects as genetic discrimination that might derive from being engineered. Additionally, emerging literature is endeavouring to address how human rights can be sustained in an age of genetic engineering. Most notably, this discourse has been informed by the recent text edited by Justine Burley, which comprises the 1998 Amnesty International lectures of Oxford University. However, the situation remains a moral minefield through which genetic technologies must navigate if they are to gain any kind of legitimacy.
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