硬皮病患者管理的生物心理社会方面

M. Špiritović
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引用次数: 1

摘要

系统性硬化症(SSc)是一种罕见的慢性结缔组织疾病,以皮肤、肌肉骨骼系统和内脏器官的特征性纤维化为特征。它是一种异质性和多形性疾病,其中疲劳、睡眠障碍、僵硬和关节疼痛是最显著的临床症状。然而,皮肤僵硬和增厚的存在通常会对这些患者的外观产生负面影响,自我不满的程度会从根本上干扰他们的个性。患者的自我意识和自我概念,伴随抑郁,也会受到影响。因此,我们不能只从生物医学的角度看待和处理这种疾病,也不应低估治疗的心理社会性质。生物、心理和社会因素是相互关联的,它们之间复杂相互作用的不平衡会破坏健康,导致或加重疾病。这就是为什么有必要为患有SSc的个体创造一种所谓的生物心理社会舒适,并在复杂治疗的意义上开发一系列活动。本章的重点是健康和疾病的心身方法,以及医学中生物心理社会模型的发展,因为它应该用于SSc患者。
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Biopsychosocial Aspects in Management of Scleroderma Patients
Systemic sclerosis (SSc) is a rare, chronic connective tissue disease with characteristic fibrosis of the skin, musculoskeletal system, and internal organs. It is a heterogeneous and polymorphic disorder, in which fatigue, sleep disturbances, stiffness, and joint pain are among the most significant clinical symptoms. However, the presence of stiffening and thickening of the skin usually has a negative impact on the appearance of these patients, and the degree of self-dissatisfaction can fundamentally interfere with their personality. Self-consciousness and self-conception of the patient, accompanied by depression, can also be affected. Thus we cannot regard this disease and approach it only from a biomedical point of view and should not underestimate the approach to the psychosocial nature of the treatment. Biological, psychological, and social factors are interconnected, and imbalances in their complex interactions disrupt health and cause or worsen the disease. That is why it is necessary to create a so-called biopsychosocial comfort of an individual with SSc and to develop a number of activities in the sense of a complex treatment. This chapter focuses on the psychosomatic approach to health and illness and the development of the biopsychosocial model in medicine just as it should be used in patients with SSc.
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