COVID-19大流行期间应用远程医疗的家庭疾病管理观点评价

A. Ünalp, P. Karaoğlu, Merve Yavuz, İpek Burcu Parlak İbiş, Ünsal Yılmaz
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摘要

2019年冠状病毒病大流行导致了对耐药癫痫(DRE)儿童进行生酮饮食疗法(KDT)远程医疗管理的普及。在本研究中,我们评估了家庭对远程医疗和KDT管理的看法和满意度。问卷共17项,选取25名因DRE而接受KDT治疗的儿童家庭。近一半的家庭受过小学教育。DRE患儿多处于KDT维持过程中。由于大流行,88%的家庭将KDT与远程医疗结合使用。60%的家庭发现很难通过远程医疗开始KDT,但96%的家庭报告通过远程医疗与KDT团队取得联系就足够了。对KDT团队进行实验室分析和结果评价的必要性评价为良好的占72%,对他们在需要改变饮食或添加维生素时的反应评价为良好的占68%。所有家庭都对KDT团队在紧急情况下的管理感到满意。60%的家庭建议其他人在任何时候都遵循KDT进行远程医疗,40%的家庭建议他们在大流行期间进行远程医疗。根据我们的研究结果,在选择将开始远程医疗和KDT的患者时,应注意家庭具有足够的教育水平。在有经验丰富和训练有素的KDT管理团队的情况下,使用远程医疗方法可能是一个很好的选择。
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Evaluation of Families’ Views on Disease Management by Applying Telemedicine During the COVID-19 Pandemic
The Coronavirus disease-2019 pandemic has led to the spread of telemedicine management of ketogenic diet therapy (KDT) in children with drug-resistant epilepsy (DRE). In this study, we evaluated the views and satisfaction of families about telemedicine and KDT management. Families of 25 children who underwent KDT for DRE were included in the 17-item questionnaire. Nearly half of the families had a primary education level. Most children with DRE were in the process of maintaining KDT. 88% of the families were applying KDT with telemedicine due to the pandemic. 60% of families found it difficult to start KDT via telemedicine, but 96% reported that reaching the KDT team via telemedicine was sufficient. The necessity of laboratory analyzes and evaluation of the results of the KDT team was evaluated as good in 72%, and their response when dietary changes or vitamin addition was required was evaluated as good in 68%. All families were satisfied with the management of the KDT team in emergencies. 60% of the family recommended others to follow the KDT with telemedicine at all times and 40% recommended them during the pandemic period. According to the results of our study, in selecting patients who will be started with telemedicine and KDT, it should be noted that the families have sufficient education levels. The use of the telemedicine method may be a good option in the presence of an experienced and trained team in KDT management.
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