你想知道什么?调查患者支持者的信息需求

Wendy Moncur, J. Masthoff, Ehud Reiter
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引用次数: 9

摘要

每一个病人都有大量的数据。对医务人员来说,理解所有这些数据是一项挑战。对于一个外行来说就更难了,他们甚至不知道医学术语是什么意思。BabyTalk-Clan这个研究项目旨在为外行观众创建个性化的数据摘要。它使用与患者有关的敏感、高度详细的临床数据。这包括给药、检查结果、医务人员的记录以及心率等持续的生理信号。我们采用定性方法获取用户需求的知识。通过访谈和基于扎根理论方法的焦点小组,我们发现大多数外行用户只想要一个关于婴儿状态的非常高级的摘要。外行用户真正想要的是父母如何应对,以及他们需要什么支持的信息。研究结果通过问卷交叉验证。
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What Do You Want to Know? Investigating the Information Requirements of Patient Supporters
There is a vast amount of data associated with any one patient. It is challenging for medical staff to understand all this data. It is even harder for a lay person, who may not even know what medical terms mean. The research project BabyTalk-Clan aims to create personalized summaries of data for a lay audience. It uses sensitive, highly-detailed clinical data relating to a patient. This includes medication given, test results, notes made by medical staff, and continuous physiological signals such as heart rate. We took a qualitative approach to knowledge acquisition for user requirements. Using interviews and a focus group within a Grounded Theory methodology, we discovered that most lay users want only a very high-level summary of the baby's state. What lay users do want is information about how the parents are coping, and what support they need. Findings were cross-validated through a questionnaire.
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