《我父亲的大脑:阿尔茨海默氏症阴影下的生活》作者:桑迪普·乔哈尔(书评)

IF 0.3 4区 文学 0 LITERATURE World Literature Today Pub Date : 2023-11-01 DOI:10.1353/wlt.2023.a910290
Katherine Schoeffler
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引用次数: 0

摘要

书评:《我父亲的大脑:阿尔茨海默病阴影下的生活》作者:Sandeep Jauhar Katherine Schoeffler Sandeep Jauhar《我父亲的大脑:阿尔茨海默病阴影下的生活》纽约Farrar, Straus and Giroux. 2023。258页。“新的经历像沙粒一样从他的指间溜走,再也碰不到了。”《我父亲的大脑:阿尔茨海默氏症阴影下的生活》讲述了一个被诊断出患有阿尔茨海默氏症而崩溃的家庭的辛酸故事。其影响的缺陷、庆祝和挑战都暴露了出来。桑迪普·乔哈尔的回忆录是感人的,情绪化的,有时是如此具有挑战性,以至于我不得不在继续之前休息一下。乔哈尔真诚地、亲自地详述了他父亲和他的家庭在诊断后生活的转变,详细描述了这种诊断的混乱现实以及它对一个家庭的影响。他分享了他父亲的故事,不仅仅是一个被疾病改变的生活,而是赞美他父亲的人性之美,作为移民的坚持,以及他对研究、服务和家庭的奉献。作为一名执业医师,Jauhar以一种引人入胜的方式与我们分享了这种疾病的历史、其发展背后的科学、当前的神经衰老研究以及阿尔茨海默病的流行病学。在详细介绍神经科医生办公室的认知能力测试时,他耐心地用医学和非医学术语向读者解释,以平衡医生就诊的情感方面和每次锻炼的科学目的。他以这样一种方式呈现他的经历,即让读者尽可能多地吸收有关病例的信息,同时密切了解病人和他们的家人,并平衡因治疗的巨大快乐和医学疾病的毁灭性痛苦而产生的情绪。这是一本难懂但引人入胜、有教育意义、鼓舞人心的书。有些章节是具有挑战性的,因为诊断进展的恐怖以这样一种个人和情感的方式揭示。乔哈尔出色地刻画了每个角色——揭露了家庭成员的天赋和挣扎。在这样一个痛苦的时刻,当他与家人分享最亲密的争论时,他从不责怪,而是将焦点转移到人类情感的现实、生物伦理问题、家庭关系以及对治愈的文化期望上。这个故事很有影响力,甚至是个人的,因为乔哈尔把我们带入了他和他父亲的世界。乔哈尔抓住了医学文献的准确力量,让人们了解医学既是一门艺术,也是一门科学。这本感人的书向读者灌输了同理心、理解和好奇心,我再推荐不过了。在洞察力、同情心和理解方面,《我父亲的大脑:阿尔茨海默氏症阴影下的生活》影响了读者,美丽而有力地捕捉了一个不可思议的男人的故事,编织了一个独特的故事,讲述了一个家庭,在这样一个毁灭性的诊断中,选择与父亲一起创造永恒的记忆,共同努力保持生活质量,并始终彼此相爱。“只要有爱,就会持续下去。”俄克拉荷马大学版权©2023世界文学今日和俄克拉荷马大学校董会
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My Father's Brain: Life in the Shadow of Alzheimer's by Sandeep Jauhar (review)
Reviewed by: My Father's Brain: Life in the Shadow of Alzheimer's by Sandeep Jauhar Katherine Schoeffler SANDEEP JAUHAR My Father's Brain: Life in the Shadow of Alzheimer's New York. Farrar, Straus and Giroux. 2023. 258 pages. "NEW EXPERIENCES slipped through his fingers like grains of sand, never to be touched again." My Father's Brain: Life in the Shadow of Alzheimer's is the poignant tale of a family devastated by an Alzheimer's diagnosis. The flaws, celebrations, and challenges of its impact are exposed. Sandeep Jauhar's memoir is moving, emotional, and so challenging at times that I was forced to take breaks before continuing. Jauhar sincerely and personally details the transformation of his father's and his family's life after the diagnosis, detailing the messy realities of such a diagnosis and what it entails for a family. He shares his father's story as so much more than merely a life altered by the disease process, instead celebrating the beauty of his father's humanity, persistence as an immigrant, and his dedication to research, service, and his family. As a practicing physician, Jauhar shares with us the history of the disease, the science behind its progression, the current neurological aging research, and the epidemiology of Alzheimer's in an engaging manner. As he details even the cognitive ability tests at the neurologist's office, he patiently explains to the reader in medical and nonmedical terminology to balance both the emotional aspects of a doctor's visit as well as the scientific aims of each exercise. He presents his experience in a way to allow readers to attempt to absorb as much information as possible about the case while getting to know a patient and their family closely and balancing the emotions that stem from being surrounded by both the great joys of healing and the devastating sufferings of medical disease. This was a difficult but engaging, educational, and inspiring book. Some chapters were challenging to get through, as the horrors of the diagnosis's progression are revealed in such a personal and emotional manner. Jauhar does a remarkable job of making each character human—exposing each gift and struggle of his family members. He never blames when sharing the most intimate arguments of his family through such a traumatic time, instead shifting the focus to the reality of human emotions, bioethical concerns, familial relations, and cultural expectations regarding healing. The story is impactful, personal even, as Jauhar transports us into his world and that of his father. Jauhar captures the precise power of medical literature to offer understanding of medicine as both an art and a science. This moving book instills empathy, understanding, and curiosity in its reader, and I could not recommend it more. For insight, compassion, and understanding, My Father's Brain: Life in the Shadow of Alzheimer's impacts the reader, captures an incredible man's story beautifully and powerfully, and weaves a unique tale of a family that, in the midst of such a devastating diagnosis, chose to create lasting memories with their father, work together to preserve quality of life, and love one another throughout. "When there is love, it will continue." Katherine Schoeffler University of Oklahoma Copyright © 2023 World Literature Today and the Board of Regents of the University of Oklahoma
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