我的早产儿拒绝包皮环切

Dionne Deschenne
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One was a philosophy course on ethics, and I chose the bioethics of infant male circumcision as the focal point of my coursework that quarter. This allowed me to work through my findings in a racially, religiously, and age-diverse classroom under the guidance of a skilled professor. I was shocked to learn that even the American Academy of Pediatrics (AAP) at that time acknowledged that there were no known medical benefits that resulted from circumcision. How, I wondered, could parents allow their newborns to undergo such a harrowing experience for no reason? As the months passed and the birth of our first son grew nearer, I had everything ready—all of the decisions made, the doctors prepared, and the hospital selected. All of that preparation went out the proverbial window when I contracted pneumonia at 30 weeks. I was admitted to the Naval Hospital and treated for a week before being airlifted to a nearby Army Hospital when my condition worsened. After a few days there, the doctor came in very early one morning to wake me. Our son's heart rate was slowing, and we were at risk of losing him. They needed to immediately perform an emergency Cesarean section to preserve his life. I was terrified, knowing the potential myriad adverse effects his pre-term birth could cause. We were rushed into the OR and within seconds I had an epidural in my back. Moments later, my perfect, tiny but silent baby was whisked from the room to be attended to by a highly skilled and immensely respected NICU team. My husband followed to keep a watchful eye on our son while I was taken to Recovery. A few hours later, I was allowed to join my husband and son in the NICU. Our baby was beautiful, but so tiny that my husband could hold him in one hand. He weighed four pounds and had an enormous needle in the top of his head. The nurse explained to me that the IV needle was in the best location for administering the IV fluids and medications that our baby needed. His pre-term birth had introduced the need for several tests and treatments I had not anticipated. This was immensely distressing for me as someone who wanted to research and understand so that I could make well-informed and ethical decisions. Keep in mind that this was in the days before smartphones. In fact, we didn't even have cell phones at that time! In order to do research, I needed to find a medical text within the hospital that I could read, or get to a library. I had an abdomen full of staples, couldn't drive, and refused to be away from my baby, so going to the library was not an option. Under the conditions, I relied on the hospital staff to help me understand the risks, benefits, and necessities of each procedure or test that they recommended. We formed a relationship of mutual respect. I think this was due to the in-depth [End Page 89] conversations we had during that time. That mutual respect we developed likely led to a remarkable conversation toward the end of our son's first week in the NICU. Our doctor was making his rounds when a nurse asked if we wanted to have our son circumcised that day since the doctor...","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":null,"pages":null},"PeriodicalIF":0.0000,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Declining Circumcision for My Premature Newborn\",\"authors\":\"Dionne Deschenne\",\"doi\":\"10.1353/nib.2023.a909667\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"Declining Circumcision for My Premature Newborn Dionne Deschenne In 1993, I was pregnant with my first of three sons and was busy preparing for his arrival. 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I was terrified, knowing the potential myriad adverse effects his pre-term birth could cause. We were rushed into the OR and within seconds I had an epidural in my back. Moments later, my perfect, tiny but silent baby was whisked from the room to be attended to by a highly skilled and immensely respected NICU team. My husband followed to keep a watchful eye on our son while I was taken to Recovery. A few hours later, I was allowed to join my husband and son in the NICU. Our baby was beautiful, but so tiny that my husband could hold him in one hand. He weighed four pounds and had an enormous needle in the top of his head. The nurse explained to me that the IV needle was in the best location for administering the IV fluids and medications that our baby needed. His pre-term birth had introduced the need for several tests and treatments I had not anticipated. 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引用次数: 0

摘要

1993年,我怀了三个儿子中的第一个,正忙着为他的到来做准备。不像大多数父母把大部分时间都花在装饰婴儿室和购买用品上,我一直在研究在他出生后的那一刻和几周内我需要做出的医疗决定。作为一名医学预科学生,我曾在医院工作过,听到过婴儿出生后不久接受检查和手术的哭声,我知道,如果我同意为我的孩子做这些检查和手术,我需要清楚这些检查和手术的必要性。我丈夫在海军服役,每次出海六个月,所以我上了几门大学课程来打发时间。一门是关于伦理学的哲学课程,我选择了男婴割礼的生物伦理学作为我那个季度课程的重点。这使我能够在一个有经验的教授的指导下,在一个种族、宗教和年龄不同的教室里研究我的发现。我震惊地得知,当时连美国儿科学会(AAP)也承认,包皮环切术没有已知的医学益处。我想知道,父母怎么能让他们的新生儿无缘无故地经历如此痛苦的经历呢?几个月过去了,我们第一个儿子的出生越来越近了,我已经准备好了一切——所有的决定都做好了,医生做好了准备,医院也选好了。当我在怀孕30周时感染肺炎时,所有的准备工作都烟消云散了。我住进海军医院,治疗了一个星期,后来病情恶化,被空运到附近的陆军医院。在那里住了几天后,一天早上医生很早就来叫醒我。我们儿子的心率在减慢,我们有失去他的危险。他们需要立即进行紧急剖宫产手术来挽救他的生命。我很害怕,知道他的早产可能会造成无数的不利影响。我们被紧急送进手术室,几秒钟后我的背部就被硬膜外麻醉了。过了一会儿,我那完美、小巧但沉默寡言的宝宝被迅速带出病房,交由技艺精湛、备受尊敬的新生儿重症监护室团队照料。在我被送去康复室的时候,我丈夫跟在后面照看着我们的儿子。几个小时后,我获准和丈夫和儿子一起住进了新生儿重症监护室。我们的孩子很漂亮,但太小了,我丈夫只能用一只手抱着他。他重四磅,头顶上插着一根巨大的针。护士向我解释说,静脉注射针的位置最适合给我们的宝宝注射液体和药物。他的早产让我需要做一些我没有预料到的检查和治疗。这对我来说是非常痛苦的,因为我想要研究和理解,这样我就可以做出明智和道德的决定。请记住,这是在智能手机出现之前的日子。事实上,那时候我们甚至没有手机!为了做研究,我需要在医院里找到一本我可以阅读的医学文献,或者去图书馆。我肚子里塞满了订书钉,不能开车,又不想离开我的孩子,所以去图书馆是不可能的。在这种情况下,我依靠医院的工作人员来帮助我了解他们推荐的每一个程序或测试的风险、好处和必要性。我们建立了相互尊重的关系。我想这是由于那段时间我们进行了深入的交谈。在儿子在新生儿重症监护室的第一周结束时,我们之间的相互尊重很可能导致了一场引人注目的谈话。那天,我们的医生正在巡视,一位护士问我们是否想给儿子做包皮环切手术,因为医生……
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Declining Circumcision for My Premature Newborn
Declining Circumcision for My Premature Newborn Dionne Deschenne In 1993, I was pregnant with my first of three sons and was busy preparing for his arrival. Unlike most parents, who focus much of their time on decorating the nursery and buying supplies, I was researching the medical decisions that I would need to make in the moments and weeks following his birth. Having worked in a hospital while a pre-medicine student, I had heard the cries of babies undergoing tests and procedures shortly after birth and knew I needed to be clear on the necessity of those tests and procedures if I was going to consent to them for my baby. My husband was in the Navy and out to sea for six months, so I took a few college courses to pass the time. One was a philosophy course on ethics, and I chose the bioethics of infant male circumcision as the focal point of my coursework that quarter. This allowed me to work through my findings in a racially, religiously, and age-diverse classroom under the guidance of a skilled professor. I was shocked to learn that even the American Academy of Pediatrics (AAP) at that time acknowledged that there were no known medical benefits that resulted from circumcision. How, I wondered, could parents allow their newborns to undergo such a harrowing experience for no reason? As the months passed and the birth of our first son grew nearer, I had everything ready—all of the decisions made, the doctors prepared, and the hospital selected. All of that preparation went out the proverbial window when I contracted pneumonia at 30 weeks. I was admitted to the Naval Hospital and treated for a week before being airlifted to a nearby Army Hospital when my condition worsened. After a few days there, the doctor came in very early one morning to wake me. Our son's heart rate was slowing, and we were at risk of losing him. They needed to immediately perform an emergency Cesarean section to preserve his life. I was terrified, knowing the potential myriad adverse effects his pre-term birth could cause. We were rushed into the OR and within seconds I had an epidural in my back. Moments later, my perfect, tiny but silent baby was whisked from the room to be attended to by a highly skilled and immensely respected NICU team. My husband followed to keep a watchful eye on our son while I was taken to Recovery. A few hours later, I was allowed to join my husband and son in the NICU. Our baby was beautiful, but so tiny that my husband could hold him in one hand. He weighed four pounds and had an enormous needle in the top of his head. The nurse explained to me that the IV needle was in the best location for administering the IV fluids and medications that our baby needed. His pre-term birth had introduced the need for several tests and treatments I had not anticipated. This was immensely distressing for me as someone who wanted to research and understand so that I could make well-informed and ethical decisions. Keep in mind that this was in the days before smartphones. In fact, we didn't even have cell phones at that time! In order to do research, I needed to find a medical text within the hospital that I could read, or get to a library. I had an abdomen full of staples, couldn't drive, and refused to be away from my baby, so going to the library was not an option. Under the conditions, I relied on the hospital staff to help me understand the risks, benefits, and necessities of each procedure or test that they recommended. We formed a relationship of mutual respect. I think this was due to the in-depth [End Page 89] conversations we had during that time. That mutual respect we developed likely led to a remarkable conversation toward the end of our son's first week in the NICU. Our doctor was making his rounds when a nurse asked if we wanted to have our son circumcised that day since the doctor...
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来源期刊
Narrative inquiry in bioethics
Narrative inquiry in bioethics Medicine-Medicine (all)
CiteScore
0.20
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0.00%
发文量
27
期刊介绍: Narrative Inquiry in Bioethics (NIB) is a unique journal that provides a forum for exploring current issues in bioethics through personal stories, qualitative and mixed-methods research articles, and case studies. NIB is dedicated to fostering a deeper understanding of bioethical issues by publishing rich descriptions of complex human experiences written in the words of the person experiencing them. While NIB upholds appropriate standards for narrative inquiry and qualitative research, it seeks to publish articles that will appeal to a broad readership of healthcare providers and researchers, bioethicists, sociologists, policy makers, and others. Articles may address the experiences of patients, family members, and health care workers.
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