评估PWS Smart-Start的影响:Prader-Willi综合征的行为分析护理人员培训计划

IF 1.4 3区 心理学 Q3 EDUCATION, SPECIAL Journal of Positive Behavior Interventions Pub Date : 2023-11-07 DOI:10.1177/10983007231200535
Kasey E. Bedard, Annette K. Griffith, Delyla Ulm, Mary Strittman, Kelly Krukowski, Angeline Eaton, Amanda Rone, Teresa Cardon
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引用次数: 0

摘要

PWS Smart-Start是一项行为护理人员培训计划,专门为3至14岁患有普瑞德-威利综合征(PWS)的儿童的护理人员开发。本研究的目的是评估该方案的可接受性和初步效果。34名患有PWS儿童的看护人接受了为期10周的PWS Smart-Start在线直播视频培训。采用准实验前测后测设计评估训练对照顾者和儿童行为、照顾者压力和倦怠以及家庭功能等多种变量的影响。结果显示,在训练后,儿童行为挑战、父母压力和倦怠均有统计学上的显著降低。在育儿实践、亲子关系质量和家庭生活质量方面也有统计学上的显著改善。社会效度测量的结果表明照顾者对该计划的满意度。这些初步结果表明,PWS Smart-Start项目不仅可以帮助PWS儿童克服行为挑战,还可以减少照顾者的压力和倦怠,改善家庭生活的各个方面。未来的研究需要复制和进一步验证这些结果,并扩展对这一人群的其他行为分析干预措施的探索。
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Evaluating the Impact of PWS Smart-Start: A Behavior Analytic Caregiver Training Program for Prader-Willi Syndrome
PWS Smart-Start is a behavioral caregiver training program developed specifically for caregivers of children with Prader-Willi syndrome (PWS) aged 3 to 14. The purpose of the current study was to evaluate the acceptability and preliminary efficacy of the program. Thirty-four caregivers of children with PWS received the PWS Smart-Start training using online live video-coaching across a 10-week period. The impact of the training on a variety of variables including caregiver and child behavior, caregiver stress and burnout, and family functioning were evaluated using a quasi-experimental pretest posttest design. Results indicated statistically significant decreases across child behavior challenges and parental stress and burnout following the training. Statistically significant improvements were also seen in parenting practices, the quality of the parent–child relationship, and family quality of life. Results of social validity measures indicated caregiver satisfaction with the program. These preliminary results indicate that the PWS Smart-Start program has the potential to not only support children with PWS through behavioral challenges but also reduce caregiver stress and burnout and improve a variety of aspects of family life. Future research is needed to replicate and further validate these results and to extend the exploration of other behavior analytic interventions for this population.
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来源期刊
CiteScore
4.90
自引率
14.30%
发文量
10
期刊介绍: ...offers sound, research-based principles of positive behavior support for use in school, home and community settings with people with challenges in behavioral adaptation. Regular features include empirical research; discussion, literature reviews, and conceptual papers; programs, practices, and innovations; forum; and media reviews.
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