前列腺癌患者家属接受护士支持性护理的体会

Salomo Salomo, Hans J. Amukugo, Anna P.K. Shilunga
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引用次数: 0

摘要

背景:诊断为前列腺癌(PCa)的男性家庭成员经历一系列支持性护理需求。文献显示,从护士到诊断为前列腺癌的男性家属的支持性护理不一致。目的:探讨和描述男性前列腺癌患者家属接受护士支持护理的经验。环境:本研究在奥沙卡提中级医院肿瘤科进行。方法:采用定性设计、探索性设计、描述性设计、现象学设计和情境设计。样本的七个家庭成员的男性诊断为前列腺癌选择使用非概率有目的的抽样技术。进行了个人面对面访谈。使用访谈指南和实地记录来收集数据。所有的采访都用录音机记录下来,并逐字抄写。数据分析采用Tesch开放编码八步法进行内容分析。使用了建立数据可信度的标准。基本的伦理原则得到了遵守。结果:该研究揭示了家庭在治疗和决策方面缺乏参与。出现了两个主题:(1)在医疗保健系统中被贬低的感觉;(2)不利于咨询男性的环境。结论:在临床实践中,诊断为前列腺癌的男性的家庭成员很少被考虑。在政策制定、医院规程的组织变革和工作人员培训方面提出了建议。贡献:本研究建议在治疗和决策过程中引入男性前列腺癌患者支持性护理的国家政策,并纳入其家庭。
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Experiences of families of men with prostate cancer on supportive care received from nurses
Background: Family members of men diagnosed with prostate cancer (PCa) experience a range of supportive care needs. Literature indicated inconsistent supportive care from nurses to families of men diagnosed with PCa.Aim: Exploring and describing the experiences of family members of men diagnosed with PCa on the supportive care received from nurses.Setting: The study was conducted in the oncology departments of the Intermediate Hospital Oshakati.Methods: Qualitative, exploratory, descriptive, phenomenological and contextual designs were adopted. A sample of seven family members of men diagnosed with PCa was selected using a non-probability purposive sampling technique. Individual face-to-face interviews were conducted. Interview guide and field notes were used to collect data. All interviews were recorded with an audio recorder and transcribed verbatim. Content analysis using Tesch’s eight steps of open coding was adopted to analyse data. Criteria for establishing trustworthiness of the data were used. Fundamental ethical principles were adhered to.Results: The study revealed lack of family involvement in treatment and decision-making. Two themes emerged: (1) feeling of being devalued in the healthcare system, and (2) non-conducive environment for counselling men.Conclusion: It became evident that family members of men diagnosed with PCa are rarely considered in clinical practice. Recommendations are made in terms of policy formulation, organisational changes in the hospital protocols and staff training.Contribution: The study proposed the introduction of national policy on supportive care of men with PCa and an inclusion of their families during treatment and decision-making.
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