父母参与青少年慢性疾病从儿科到成人护理的转变:北美文献的范围审查。

IF 1.3 Q3 PEDIATRICS International Journal of Pediatrics Pub Date : 2023-11-24 eCollection Date: 2023-01-01 DOI:10.1155/2023/9392040
Bryn Badour, Amanda Bull, Abha A Gupta, Raza M Mirza, Christopher A Klinger
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引用次数: 0

摘要

随着医学的进步和医疗技术的改进,越来越多患有慢性病的儿童存活到成年。在从儿科到成人护理的整个过渡过程中,对支持青少年的兴趣也相应增加。然而,目前缺乏研究集中在这些患者的父母在过渡到成人护理期间和之后应该扮演的角色,以及在北美的背景下,在过渡期间保持父母的参与是否有益。因此,本范围审查利用Arksey和O'Malley的五步框架来考虑父母的角色在慢性病儿童过渡到成人护理。APA PsycInfo, CINAHL, EMBASE, MEDLINE, ProQuest和Scopus与高级Google搜索一起被搜索。对符合以下纳入标准的30篇文章进行主题内容分析:(1)在2010年至2022年期间以英文发表的文章,(2)在加拿大或美国进行的文章,(3)考虑慢性疾病过渡到成人护理的青少年,(4)在标题或摘要中注明家庭,(5)研究的患者人群不以认知发育迟缓或精神疾病来定义。从文献中出现了三个主题:在过渡到成人护理患者期间保持父母参与的影响,父母在孩子护理过渡期间经历稳定性和支持的丧失,以及在护理过渡期间发生的重大非医疗生活事件。据报道,随着孩子的需求逐渐成熟,父母扮演的支持性角色会发生变化,这对年轻人的过渡过程是有益的,而在这段时间里,父母在孩子身上徘徊或微观管理他们的孩子,会阻碍成功的过渡。最后,大多数评论文章强调,维持父母的参与对青少年过渡到成人照顾有积极的影响。因此,实践和政策的结构应使父母在整个过渡过程中参与进来,以便在这一变革时期最好地支持他们的慢性病儿童。
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Parental Involvement in the Transition from Paediatric to Adult Care for Youth with Chronic Illness: A Scoping Review of the North American Literature.

With medical advancements and improvements in medical technology, an increasing number of children with chronic conditions survive into adulthood. There is accordant growing interest toward supporting adolescents throughout the transition from paediatric to adult care. However, there is currently a paucity of research focusing on the role that these patients' parents should play during and after the transition to adult care and if maintained parental involvement is beneficial during this transition within a North American context. Accordingly, this scoping review utilized Arksey and O'Malley's five-step framework to consider parental roles during chronically ill children's transition to adult care. APA PsycInfo, CINAHL, EMBASE, MEDLINE, ProQuest, and Scopus were searched alongside advanced Google searches. Thematic content analysis was conducted on 30 articles meeting the following inclusion criteria: (1) published in English between 2010 and 2022, (2) conducted in Canada or the United States, (3) considered adolescents with chronic conditions transitioning to adult care, (4) family being noted in the title or abstract, and (5) patient populations of study not being defined by delays in cognitive development, nor mental illness. Three themes emerged from the literature: the impacts of maintaining parental involvement during transition to adult care for patients, parents experiencing feeling loss of stability and support surrounding the transition of their child's care, and significant nonmedical life events occurring for youths at the time of transition of care. Parents assuming supportive roles which change alongside their maturing child's needs were reported as being beneficial to young peoples' transition processes, while parents who hover over or micromanage their children during this time were found to hinder successful transitions. Ultimately, the majority of reviewed articles emphasized maintained parental involvement as having a net positive impact on adolescents' transitions to adult care. As such, practice and policies should be structured to engage parents throughout the transition process to best support their chronically ill children during this time of change.

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来源期刊
CiteScore
3.90
自引率
0.00%
发文量
0
审稿时长
4 weeks
期刊介绍: International Journal of Pediatrics is a peer-reviewed, open access journal that publishes original researcharticles, review articles, and clinical studies in all areas of pediatric research. The journal accepts submissions presented as an original article, short communication, case report, review article, systematic review, or letter to the editor.
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