Katja Schladitz, Elena Caroline Weitzel, Margrit Löbner, Bettina Soltmann, Frank Jessen, Jochen Schmitt, Andrea Pfennig, Steffi G Riedel-Heller, Uta Gühne
{"title":"[精神疾病患者及其家人参与制定以证据和共识为基础的临床实践指南的成功率如何？精神病学调查的结果]。","authors":"Katja Schladitz, Elena Caroline Weitzel, Margrit Löbner, Bettina Soltmann, Frank Jessen, Jochen Schmitt, Andrea Pfennig, Steffi G Riedel-Heller, Uta Gühne","doi":"10.1055/a-2201-7987","DOIUrl":null,"url":null,"abstract":"<p><strong>Objective: </strong>The study examines how successful the participation of people with mental illness and family members is currently in the development of psychiatric guidelines.</p><p><strong>Methods: </strong>Survey results of N=561 (Response 37%) guideline developers are analyzed.</p><p><strong>Results: </strong>Involvement of affected individuals succeeds more often than that of family members (61% vs. 55%). 68% felt that this participation was central to successful guideline development. 51% perceived discrepancies between empirical evidence and experience perspective. 33-36% perceived a lack of appreciation of experience expertise, 37% an insufficient representation and 46% an inequality in consensus building. 45% did not see barriers effectively removed.</p><p><strong>Conclusion: </strong>There remain challenges in the participation of people with mental illness and family members. There is an increasing awareness that their participation is central.</p>","PeriodicalId":20711,"journal":{"name":"Psychiatrische Praxis","volume":null,"pages":null},"PeriodicalIF":1.1000,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"[How Successful is the Participation of People with Mental Illness and Family Members in the Development of Evidence- and Consensus-Based Clinical Practice Guidelines? Results of a Survey in Psychiatry].\",\"authors\":\"Katja Schladitz, Elena Caroline Weitzel, Margrit Löbner, Bettina Soltmann, Frank Jessen, Jochen Schmitt, Andrea Pfennig, Steffi G Riedel-Heller, Uta Gühne\",\"doi\":\"10.1055/a-2201-7987\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Objective: </strong>The study examines how successful the participation of people with mental illness and family members is currently in the development of psychiatric guidelines.</p><p><strong>Methods: </strong>Survey results of N=561 (Response 37%) guideline developers are analyzed.</p><p><strong>Results: </strong>Involvement of affected individuals succeeds more often than that of family members (61% vs. 55%). 68% felt that this participation was central to successful guideline development. 51% perceived discrepancies between empirical evidence and experience perspective. 33-36% perceived a lack of appreciation of experience expertise, 37% an insufficient representation and 46% an inequality in consensus building. 45% did not see barriers effectively removed.</p><p><strong>Conclusion: </strong>There remain challenges in the participation of people with mental illness and family members. There is an increasing awareness that their participation is central.</p>\",\"PeriodicalId\":20711,\"journal\":{\"name\":\"Psychiatrische Praxis\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":1.1000,\"publicationDate\":\"2024-05-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Psychiatrische Praxis\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1055/a-2201-7987\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2023/12/22 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q4\",\"JCRName\":\"PSYCHIATRY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Psychiatrische Praxis","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1055/a-2201-7987","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2023/12/22 0:00:00","PubModel":"Epub","JCR":"Q4","JCRName":"PSYCHIATRY","Score":null,"Total":0}
[How Successful is the Participation of People with Mental Illness and Family Members in the Development of Evidence- and Consensus-Based Clinical Practice Guidelines? Results of a Survey in Psychiatry].
Objective: The study examines how successful the participation of people with mental illness and family members is currently in the development of psychiatric guidelines.
Methods: Survey results of N=561 (Response 37%) guideline developers are analyzed.
Results: Involvement of affected individuals succeeds more often than that of family members (61% vs. 55%). 68% felt that this participation was central to successful guideline development. 51% perceived discrepancies between empirical evidence and experience perspective. 33-36% perceived a lack of appreciation of experience expertise, 37% an insufficient representation and 46% an inequality in consensus building. 45% did not see barriers effectively removed.
Conclusion: There remain challenges in the participation of people with mental illness and family members. There is an increasing awareness that their participation is central.
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