养育智障儿童:将经验映射到权力威胁意义框架中

Duncan Dudley-Hicks, Gail James, Gareth Morgan
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引用次数: 0

摘要

本文首次通过 "权力威胁意义框架"(Power Threat Meaning Framework,PTMF)的视角来探讨智障儿童的养育经验。通常情况下,父母的反应被医疗化、病理化,并被以新自由主义-残疾主义社会政策为基础的服务和系统问题化。我们对七位被诊断为智障儿童的家长进行了重复访谈,以共同构建 PTMF 叙述。利用模板分析法,家长们的经历很容易与 PTMF 要素相吻合:权力、威胁、意义、威胁反应和优势。对研究结果进行综合后,得出了在能力主义社会中养育智障儿童的临时 PTMF 模式。研究结果强调了父母所承受的威胁与其子女所遭遇的威胁之间的相互联系。我们希望由此产生的模式和主题内容能够帮助父母对自己的经历形成非病态的理解。
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Parenting a child with an intellectual disability: Mapping experiences onto the power threat meaning framework
This paper is the first to explore the experiences of parenting a child with intellectual disabilities through the lens of the Power Threat Meaning Framework (PTMF). Typically, parents’ responses are medicalised, pathologised and problematised by services and systems that are underpinned by neoliberal-ableist social policies. Repeat interviews were undertaken with seven parents of children with intellectual disability diagnoses to co-construct PTMF narratives. Utilising template analysis, parents’ experiences readily fitted within the PTMF elements: Power; Threat; Meaning; Threat Responses; and Strengths. Results were synthesised to offer a provisional PTMF pattern concerning parenting a child with ID within ableist societies. Findings emphasised how the threats endured by parents were interlinked with those encountered by their child. It is hoped the resultant pattern and theme content will support parents in developing non-pathologising understandings of their own experiences.
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