在黑暗中我们相遇:安妮-厄尔诺的护理与痴呆症记事》(In Darkness We Meet: Annie Ernaux's Account of Care and Dementia)。

IF 4.6 2区 医学 Q1 GERONTOLOGY Gerontologist Pub Date : 2024-06-01 DOI:10.1093/geront/gnad175
Ieva Stončikaitė, Óscar Ortega Montero
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引用次数: 0

摘要

围绕老龄化、痴呆症和护理问题的复杂性是一个及时而紧迫的问题,它超越了机构的界限,体现了一场关于晚年生活的跨学科批判性辩论。近几十年来,有关痴呆症的文学和文化表述以及护理叙事显著增加,这些叙事为人们了解痴呆症患者错综复杂的生活和变老模式提供了宝贵的见解。诺贝尔文学奖得主安妮-埃尔诺(Annie Ernaux)在她的回忆录《我仍在黑暗中》(1999 年)中,坦诚地讲述了她母亲从开始患痴呆症到逐渐衰退的过程。埃尔诺真诚地探讨了痴呆症的细微差别以及在家庭和机构背景下的护理问题,并揭示了母亲和女儿之间复杂而不安的关系。通过见证,她走上了一条治愈之路,这让她能够直面过去的创伤,更好地应对未来的挑战。埃尔诺对母亲痴呆症和衰老的描述令人心碎,既是一部忏悔录,也是一种叙事疗法,揭示了衰老、疾病和未解决的家庭矛盾所带来的挑战。她的作品揭示了过去、现在和未来之间的相互联系,并表明疾病叙事可以成为变革、身份形成和自我反思的催化剂。然而,埃尔诺的忏悔回忆录也对生命写作的伦理和身份问题提出了质疑,并且通过揭露其母亲在面对痴呆症和护理时的脆弱性和亲密关系,似乎延续了病理化的医学目光。
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In Darkness We Meet: Annie Ernaux's Account of Care and Dementia.

Background and objectives: The complexities surrounding aging, dementia, and care are timely issues that transcend beyond institutional boundaries, evincing a critical debate on later life across disciplines. The aim of this study is to offer fresh insights into the intricate paradigms of living and growing older with dementia. The study focuses on the Nobel Prize-winning author Annie Ernaux's memoir I Remain in Darkness (1999), which provides a candid account of her mother's journey through dementia from its onset to the gradual decline.

Research design and methods: This article employs the theoretical frameworks of literary gerontology, illness narratives and life writing to address the challenges of aging, dementia and care that are represented in Ernaux's memoir. It also addresses societal attitudes and stigma associated with aging and dementia by exploring the embarrassment that individuals and families experience when confronted with the deteriorating mental health of their loved ones.

Results: Ernaux's memoir explores the nuances of dementia and caregiving within both the familial and institutional context, and sheds light on the complex relationship between a mother and a daughter. Through the act of witnessing, Ernaux embarks on a path of healing, which allows her to confront her past wounds and better navigate the challenges that lie ahead. However, Ernaux's confessional memoir also troubles the ethics of life writing and identity issues, and seems to perpetuate the pathologizing medical gaze through the exposure of her mother's vulnerability and intimacy in the face of dementia and care.

Discussion and implications: Ernaux's account of her mother's dementia and aging is both a confessional piece of writing and a narrative therapy, which reveals the challenges of aging, illness, and unresolved family tensions. Her work illuminates the interconnectedness between the past, present, and future, and shows that illness narratives can act as a catalyst for transformative change, identity formation, and self-reflection. The article addresses the intricacies of old age, showcasing how life writing and humanities-based inquiry can bring to the fore key aspects of the latest stages in life, which are often unvoiced because they represent the most unpleasant and feared aspects of aging in contemporary society.

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来源期刊
Gerontologist
Gerontologist GERONTOLOGY-
CiteScore
11.00
自引率
8.80%
发文量
171
期刊介绍: The Gerontologist, published since 1961, is a bimonthly journal of The Gerontological Society of America that provides a multidisciplinary perspective on human aging by publishing research and analysis on applied social issues. It informs the broad community of disciplines and professions involved in understanding the aging process and providing care to older people. Articles should include a conceptual framework and testable hypotheses. Implications for policy or practice should be highlighted. The Gerontologist publishes quantitative and qualitative research and encourages manuscript submissions of various types including: research articles, intervention research, review articles, measurement articles, forums, and brief reports. Book and media reviews, International Spotlights, and award-winning lectures are commissioned by the editors.
期刊最新文献
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