寨卡出发:改装电动乘骑车用于先天性寨卡综合症(CZS)儿童行动的可行性研究。

IF 16.4 1区 化学 Q1 CHEMISTRY, MULTIDISCIPLINARY Accounts of Chemical Research Pub Date : 2024-10-01 Epub Date: 2024-01-02 DOI:10.1080/17483107.2023.2300052
Jean Bendito Felix, Ana Carolina de Campos, Samuel W Logan, Julianne Machado, Karoline Souza Monteiro, Egmar Longo
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引用次数: 0

摘要

目的:从先天性寨卡综合征(CZS)儿童在目标实现、活动能力、社会功能和参与方面的可接受性和潜在变化的角度,探讨使用改装乘骑车进行干预的可行性:对患有先天性寨卡综合症(CZS)、粗大运动功能分类系统(GMFCS)四级和五级的儿童进行了干预前后的可行性研究。干预包括 12 周的训练(每周 3 次,每次 40 分钟)和 4 周的随访。主要结果包括坚持率、满意度和移动能力学习。次要结果包括目标达成度、活动能力、社交/认知功能和参与度。研究人员进行了描述性统计。为了探究干预可能带来的个体变化,研究人员使用Wilcoxon检验来分析儿科残疾评估量表--计算机自适应测试(PEDI-CAT)数据、幼儿参与和环境测量(YC-PEM)/儿童和青少年参与和环境测量(PEM-CY),以及PEDI-CAT各领域的标准误差测量:四名儿童(中位数年龄为 4.75 岁;两名女性:三人处于 GMFCS 五级水平)参加了此次活动。坚持干预的时间占总干预时间的 75%,家庭成员表示满意或非常满意。干预后,儿童在学习使用改装后的乘骑小汽车方面取得了进步,目标达成度也有所提高。在PEDI-CAT领域(活动能力和社交/认知能力)观察到了个体变化,但在参与结果方面没有显著变化:结论:GMFCS IV级和V级的CZS儿童可以学会使用电动乘骑车、实现目标并获得满足感。
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Go Zika Go: feasibility study with modified motorized ride-on cars for the mobility of children with Congenital Zika Syndrome (CZS).

Purpose: To explore the feasibility of an intervention using modified ride-on cars in terms of acceptability and potential changes in goal attainment, mobility, social function, and participation of children with Congenital Zika Syndrome (CZS).

Materials and methods: A pre- and post-intervention feasibility study was conducted with children with CZS, levels IV and V of the Gross Motor Function Classification System (GMFCS). The intervention consisted of 12 weeks of training (3 times a week for 40 min per session) and 4 weeks of follow-up. The primary outcomes included adherence, satisfaction, and learning in mobility. Secondary outcomes encompassed goal attainment, mobility, social/cognitive function, and participation. Descriptive statistics were performed. To explore potential individual changes with the intervention, Wilcoxon test was used to analyze Pediatric Evaluation of Disability Inventory - Computer Adaptive Test (PEDI-CAT) data and Young Children's Participation and Environment Measure (YC-PEM)/Participation and Environment Measure for Children and Youth (PEM-CY), along with standard error measurements of the PEDI-CAT domains.

Results: Four children participated (median age 4.75 years; two females: three at level V on the GMFCS). Adherence was 75% of the total intervention time, and family members reported being satisfied or very satisfied. Children showed gains in learning the use of the modified ride-on cars and an increase in goal attainment after the intervention. Individual changes were observed in the PEDI-CAT domains (mobility and social/cognitive), but there were no significant changes in participation outcomes.

Conclusions: Children with CZS at GMFCS levels IV and V can learn to use motorized ride-on cars, attainment goals, and experience satisfaction.

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来源期刊
Accounts of Chemical Research
Accounts of Chemical Research 化学-化学综合
CiteScore
31.40
自引率
1.10%
发文量
312
审稿时长
2 months
期刊介绍: Accounts of Chemical Research presents short, concise and critical articles offering easy-to-read overviews of basic research and applications in all areas of chemistry and biochemistry. These short reviews focus on research from the author’s own laboratory and are designed to teach the reader about a research project. In addition, Accounts of Chemical Research publishes commentaries that give an informed opinion on a current research problem. Special Issues online are devoted to a single topic of unusual activity and significance. Accounts of Chemical Research replaces the traditional article abstract with an article "Conspectus." These entries synopsize the research affording the reader a closer look at the content and significance of an article. Through this provision of a more detailed description of the article contents, the Conspectus enhances the article's discoverability by search engines and the exposure for the research.
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