医护人员眼中的护理人员所关心的问题。

IF 1.9 4区 医学 Q3 HEALTH POLICY & SERVICES Palliative & Supportive Care Pub Date : 2024-06-01 DOI:10.1017/S1478951523001864
Carolina Oliveira, Daniela Lourenço, Luciana Sotero, Ana Paula Relvas
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引用次数: 0

摘要

目标:医学和科学的进步使越来越多的慢性病患者(即癌症患者)得以延年益寿。尽管如此,姑息关怀(PC)方法仍在不断引入,并逐渐融入到患有此类疾病的病人和家庭的生活中。因此,我们的社会对照顾这类人群的个人需求在不断增加,这就产生了所谓的 "非正式照顾者"。本研究旨在根据在这些环境中工作的医疗专业人员的看法和记录,研究非正规护理人员在护理接受 PC 治疗的癌症患者时所面临的主要障碍。为此,研究人员对葡萄牙两家姑息治疗机构的书面文件进行了分析:方法:根据医护人员的记录,以医护人员与家属护理人员之间的接触为重点,进行归纳式主题分析:结果:确定了三大主题:(1) 负担;(2) 疾病对家庭内部的影响;(3) 网络脆弱性。其中包括对家庭和社会支持作用的强调、这一时期的高心理发病率和照顾者的高负担,以及对疾病信息的巨大需求:这项研究让人们更广泛地了解到家庭照顾者,尤其是那些在 "角色 "之间游走的照顾者每天所经历的挣扎。考虑到满足家庭需求的重要性,了解照顾者在其亲人疾病晚期所经历的障碍范围至关重要。未来的研究和从业人员在考虑针对这一人群的新方法时,应该考虑这些观察结果和主题,因为这些方法应该非常有针对性且时间较短,以满足人们的需求。
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Caregivers' concerns through health professionals' eyes.

Objectives: Advancements in medicine and science have enabled more and more people to live longer with a chronic medical condition, namely cancer. Nevertheless, the palliative care (PC) approach continues to be introduced and incorporated later in the lives of patients and families dealing with such conditions. Thus, the need for individuals to care for this population in our society is increasing, giving rise to the so-called "informal caregivers." The present study intends to examine the main obstacles faced by informal caregivers taking care of a cancer patient receiving PC based on what health professionals working in these settings perceive and write down. To achieve this goal, the written files of 2 Portuguese palliative care institutions were analyzed.

Methods: An inductive thematic analysis was conducted, focusing on the contact between health professionals and family caregivers and based on the notes taken by health professionals.

Results: Three main overarching themes were identified: (1) burden, (2) intra-family impact of the illness, and (3) network vulnerabilities. Included in this are the emphasis on the role of the family and social support, the high levels of psychological morbidity and caregiver burden present over this period, and a great need for information about the illness.

Significance of results: This study provided a broader awareness regarding the daily struggle experienced by family caregivers, particularly those who juggle between "roles." It is vital to understand the scope of the obstacles experienced by caregivers during the terminal phase of their loved one's illness, given how important it is to address the family's needs. Future studies and practitioners should consider these observations and topics when considering new approaches for this population, as they ought to be quite focused and short in time in order to meet people's needs.

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来源期刊
Palliative & Supportive Care
Palliative & Supportive Care HEALTH POLICY & SERVICES-
CiteScore
4.10
自引率
9.10%
发文量
280
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