尊严疗法对肌萎缩性脊髓侧索硬化症患者的影响:病例研究。

IF 1.9 4区 医学 Q3 HEALTH POLICY & SERVICES Palliative & Supportive Care Pub Date : 2024-06-01 DOI:10.1017/S1478951523001888
Mariana do Valle Meira, Rudval Souza da Silva, Harvey Max Chochinov, Maria Olivia Sobral Fraga de Medeiros, Marilaine Matos de Menezes Ferreira, Marina de Góes Salvetti
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引用次数: 0

摘要

目的:分析尊严疗法(DT)对肌萎缩侧索硬化症(ALS)患者的身体、生存和心理症状的影响:分析尊严疗法(DT)对肌萎缩性脊髓侧索硬化症(ALS)患者的身体、生存和社会心理症状的影响:这是一项混合方法的案例研究,采用并行三角测量策略来分析 DT 对 3 名 ALS 患者的影响。数据收集包括 3 次实施有效量表,以评估多种身体症状、焦虑、抑郁、精神健康和患者尊严量表(PDI),然后实施 DT 和进行半结构化访谈:量表结果显示,根据评分结果,DT 改善了对身体、社交、情感、精神和生存症状的评估。值得注意的是,新近确诊的患者在 DT 后的焦虑和抑郁得分较高。在 PDI 方面,得分显示所有 3 个病例的尊严感都有所改善,这与实施 DT 后积极的口头报告相吻合:这项研究让我们得以分析 DT 对 ALS 患者的身体、生存和社会心理症状的影响,表明这种方法对这类患者的潜在益处。参与者报告了对疼痛和疲劳的积极影响,能够反思自己的人生轨迹,并重新获得了自身的价值和意义。
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Effects of Dignity Therapy on individuals with amyotrophic lateral sclerosis: Case studies.

Objectives: To analyze the effects of Dignity Therapy (DT) on the physical, existential, and psychosocial symptoms of individuals with amyotrophic lateral sclerosis (ALS).

Methods: This is a mixed-methods case study research that used the concurrent triangulation strategy to analyze the effects of DT on 3 individuals with ALS. Data collection included 3 instances of administering validated scales to assess multiple physical symptoms, anxiety, depression, spiritual well-being, and the Patient Dignity Inventory (PDI), followed by the implementation of DT and a semi-structured interview.

Results: The scale results indicate that DT led to an improvement in the assessment of physical, social, emotional, spiritual, and existential symptoms according to the score results. It is worth noting that the patient with a recent diagnosis showed higher scores for anxiety and depression after DT. Regarding the PDI, the scores indicate improvements in the sense of dignity in all 3 cases, which aligns with the positive verbal reports after the implementation of DT.

Significance of results: This study allowed us to analyze the effects of DT on the physical, existential, and psychosocial symptoms of individuals with ALS, suggesting the potential benefits of this approach for this group of patients. Participants reported positive effects regarding pain and fatigue, could reflect on their life trajectories, and regained their value and meaning.

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来源期刊
Palliative & Supportive Care
Palliative & Supportive Care HEALTH POLICY & SERVICES-
CiteScore
4.10
自引率
9.10%
发文量
280
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