Ilaria Basile, Letteria Consolo, Daniele Rusconi, Laura Arba, Flavia Rampichini, Augusto Caraceni, Maura Lusignani
{"title":"姑息关怀中癌症患者对未满足需求的看法:使用 Meta-Ethnography 进行定性综述。","authors":"Ilaria Basile, Letteria Consolo, Daniele Rusconi, Laura Arba, Flavia Rampichini, Augusto Caraceni, Maura Lusignani","doi":"10.1177/10499091231226429","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>As cancer patients approach the end of life, their needs become more complex, increasing the demand for palliative care. Advanced-stage cancer patients encounter increasing unmet psychological, physical, autonomy, and communication needs, reflecting the difference between patients' perceived requirements and the support from health care professionals. The objective of this study was to synthesize qualitative evidence on unmet needs in palliative cancer care among inpatient and outpatient adults.</p><p><strong>Methods: </strong>We conducted a meta-ethnographic review according to Noblit and Hare's framework and the operationalized guidelines developed by Sattar. The eMERGe Reporting Guidance was followed. A literature search was conducted in Cinahl, Embase, Medline, Scopus, Web of Science, PsycINFO and Google Scholar for gray literature. For all the studies, direct quotes from the participants and authors' results were identified, coded and analyzed in NVivo 1.7.1 and extracted as I and II order constructs from which higher third-order themes originated.</p><p><strong>Results: </strong>Eight studies were included. Four new themes emerged, representing areas where palliative cancer care patients expressed a need for help: <i>the need for comprehensive, patient-centered care, the need for maintaining a sense of autonomy and dignity, the need for attentive support to patients' soul and the need for accessible and timely care.</i></p><p><strong>Conclusions: </strong>Palliative care patients require a secure, suffering-free end-of-life journey with informed decision-making and team support. Ensuring continuity of care, validating their suffering, and allocating sufficient time are crucial aspects of care. This involves maintaining a consistent care plan, respecting patients' emotions and experiences, and providing services tailored to individual needs.</p>","PeriodicalId":94222,"journal":{"name":"The American journal of hospice & palliative care","volume":" ","pages":"1491-1505"},"PeriodicalIF":0.0000,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11430178/pdf/","citationCount":"0","resultStr":"{\"title\":\"The Perspective of Cancer Patients in Palliative Care on Unmet Needs: A Qualitative Synthesis Using Meta-Ethnography.\",\"authors\":\"Ilaria Basile, Letteria Consolo, Daniele Rusconi, Laura Arba, Flavia Rampichini, Augusto Caraceni, Maura Lusignani\",\"doi\":\"10.1177/10499091231226429\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>As cancer patients approach the end of life, their needs become more complex, increasing the demand for palliative care. Advanced-stage cancer patients encounter increasing unmet psychological, physical, autonomy, and communication needs, reflecting the difference between patients' perceived requirements and the support from health care professionals. The objective of this study was to synthesize qualitative evidence on unmet needs in palliative cancer care among inpatient and outpatient adults.</p><p><strong>Methods: </strong>We conducted a meta-ethnographic review according to Noblit and Hare's framework and the operationalized guidelines developed by Sattar. The eMERGe Reporting Guidance was followed. A literature search was conducted in Cinahl, Embase, Medline, Scopus, Web of Science, PsycINFO and Google Scholar for gray literature. For all the studies, direct quotes from the participants and authors' results were identified, coded and analyzed in NVivo 1.7.1 and extracted as I and II order constructs from which higher third-order themes originated.</p><p><strong>Results: </strong>Eight studies were included. Four new themes emerged, representing areas where palliative cancer care patients expressed a need for help: <i>the need for comprehensive, patient-centered care, the need for maintaining a sense of autonomy and dignity, the need for attentive support to patients' soul and the need for accessible and timely care.</i></p><p><strong>Conclusions: </strong>Palliative care patients require a secure, suffering-free end-of-life journey with informed decision-making and team support. Ensuring continuity of care, validating their suffering, and allocating sufficient time are crucial aspects of care. This involves maintaining a consistent care plan, respecting patients' emotions and experiences, and providing services tailored to individual needs.</p>\",\"PeriodicalId\":94222,\"journal\":{\"name\":\"The American journal of hospice & palliative care\",\"volume\":\" \",\"pages\":\"1491-1505\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2024-12-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11430178/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"The American journal of hospice & palliative care\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1177/10499091231226429\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2024/1/5 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"The American journal of hospice & palliative care","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1177/10499091231226429","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2024/1/5 0:00:00","PubModel":"Epub","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0
摘要
背景:随着癌症患者接近生命的终点,他们的需求变得更加复杂,对姑息治疗的需求也随之增加。晚期癌症患者在心理、生理、自主性和沟通等方面的需求未得到满足的情况越来越多,这反映出患者感知到的需求与医护人员提供的支持之间存在差异。本研究的目的是总结住院和门诊成人癌症姑息治疗中未满足需求的定性证据:我们根据 Noblit 和 Hare 的框架以及 Sattar 制定的操作指南进行了元人种学综述。我们遵循了 eMERGe 报告指南。在 Cinahl、Embase、Medline、Scopus、Web of Science、PsycINFO 和 Google Scholar 中对灰色文献进行了检索。在 NVivo 1.7.1 中对所有研究的参与者的直接引文和作者的研究结果进行了识别、编码和分析,并将其提取为一阶和二阶建构,从中衍生出更高的三阶主题:结果:共纳入八项研究。出现了四个新的主题,代表了癌症姑息关怀患者表示需要帮助的领域:需要全面的、以患者为中心的关怀;需要保持自主感和尊严;需要对患者的心灵提供贴心的支持;需要可获得的、及时的关怀:姑息关怀患者需要一个安全、无痛苦的临终旅程,需要知情决策和团队支持。确保姑息关怀的连续性、确认病人的痛苦并分配足够的时间是关怀的关键环节。这包括保持护理计划的连贯性、尊重病人的情感和经历,以及提供符合个人需求的服务。
The Perspective of Cancer Patients in Palliative Care on Unmet Needs: A Qualitative Synthesis Using Meta-Ethnography.
Background: As cancer patients approach the end of life, their needs become more complex, increasing the demand for palliative care. Advanced-stage cancer patients encounter increasing unmet psychological, physical, autonomy, and communication needs, reflecting the difference between patients' perceived requirements and the support from health care professionals. The objective of this study was to synthesize qualitative evidence on unmet needs in palliative cancer care among inpatient and outpatient adults.
Methods: We conducted a meta-ethnographic review according to Noblit and Hare's framework and the operationalized guidelines developed by Sattar. The eMERGe Reporting Guidance was followed. A literature search was conducted in Cinahl, Embase, Medline, Scopus, Web of Science, PsycINFO and Google Scholar for gray literature. For all the studies, direct quotes from the participants and authors' results were identified, coded and analyzed in NVivo 1.7.1 and extracted as I and II order constructs from which higher third-order themes originated.
Results: Eight studies were included. Four new themes emerged, representing areas where palliative cancer care patients expressed a need for help: the need for comprehensive, patient-centered care, the need for maintaining a sense of autonomy and dignity, the need for attentive support to patients' soul and the need for accessible and timely care.
Conclusions: Palliative care patients require a secure, suffering-free end-of-life journey with informed decision-making and team support. Ensuring continuity of care, validating their suffering, and allocating sufficient time are crucial aspects of care. This involves maintaining a consistent care plan, respecting patients' emotions and experiences, and providing services tailored to individual needs.