解决多发性硬化症患者精神健康问题的可行性:混合方法项目评估》。

IF 2.1 4区 医学 Q1 REHABILITATION American Journal of Occupational Therapy Pub Date : 2024-01-01 DOI:10.5014/ajot.2024.050323
Melissa Ross Bowen, Joan Augustyn, Leah Fisher, Lisa Mische Lawson
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引用次数: 0

摘要

重要性:精神健康是多发性硬化症(MS)等慢性病患者与健康相关的生活质量的一个重要方面,但有关干预措施的研究仍然有限:评估针对多发性硬化症患者精神健康的职业疗法干预的可行性:设计:对定性数据进行理论专题分析,采用混合方法进行项目评估:地点:美国中西部城市为多发性硬化症患者提供服务的社区中心:共有 42 名参与者参加了至少一次课程;22 名参与者提供了定性数据。10名参与者符合定量分析的纳入标准,包括完成了前测和后测,并参加了至少一半的课程:创造意义 "是一项基于 "职业整体性模型 "的小组干预活动,每周进行八次,每次 45 分钟。重点是探索并将精神实践融入日常生活:参与者完成慢性病治疗功能评估-精神健康 12 项量表(FACIT-Sp-12),以衡量精神健康状况,并回答开放式问题。对出席情况进行记录,并由主持人和观察员提供定性观察结果:结果:FACIT-Sp-12 测试前与测试后的得分比较表明,精神幸福感得到了适度改善(d = 0.41)。考勤和定性数据支持了干预的可行性,并提出了需要改进的地方:创造意义 "是一项可行的干预措施,显示出促进多发性硬化症患者精神健康的前景。值得进一步研究。通俗摘要:本研究介绍了一种实用且可接受的职业治疗小组干预措施--"创造意义",它在改善多发性硬化症患者的精神健康方面显示出了良好的潜力。
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Feasibility of Addressing the Spiritual Well-Being of Persons With Multiple Sclerosis: A Mixed-Methods Program Evaluation.

Importance: Spiritual well-being is an important aspect of health-related quality of life for persons with chronic illnesses such as multiple sclerosis (MS), yet research on interventions remains limited.

Objective: To assess the feasibility of an occupational therapy intervention addressing the spiritual well-being of people with MS.

Design: Mixed-methods program evaluation using theoretical thematic analysis of qualitative data.

Setting: Community center serving people with MS in a midwestern U.S. city.

Participants: A total of 42 participants attended at least one session; 22 participants provided qualitative data. Ten met the inclusion criteria for quantitative analysis, including completion of pretest and posttest measures and attendance of at least half of the sessions.

Intervention: Making Meaning, a group intervention based on the Model of Occupational Wholeness, was conducted over eight weekly 45-min sessions. The focus was on exploring and integrating spiritual practices into daily life.

Outcomes and measures: Participants completed the Functional Assessment of Chronic Illness Therapy-Spiritual Well-Being 12-Item Scale (FACIT-Sp-12) to measure spiritual well-being and answered open-ended questions. Attendance was recorded and the facilitator and observers provided qualitative observations.

Results: Pretest-posttest comparisons of FACIT-Sp-12 scores indicated a moderate improvement in spiritual well-being (d = 0.41). Attendance and qualitative data supported the intervention's feasibility and suggested areas for refinement.

Conclusions and relevance: Making Meaning is a feasible intervention, showing promise for promoting spiritual well-being for people with MS. Further research is warranted. Plain-Language Summary: This study introduces a practical and acceptable occupational therapy group intervention, Making Meaning, which shows promising potential for improving the spiritual well-being of people with multiple sclerosis.

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来源期刊
CiteScore
3.10
自引率
10.30%
发文量
406
期刊介绍: The American Journal of Occupational Therapy (AJOT) is an official publication of the American Occupational Therapy Association, Inc. and is published 6 times per year. This peer reviewed journal focuses on research, practice, and health care issues in the field of occupational therapy. AOTA members receive 6 issues of AJOT per year and have online access to archived abstracts and full-text articles. Nonmembers may view abstracts online but must purchase full-text articles.
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