"在会议上,每个人都在说'健康数据是未来':关于在临床数据仓库中重新使用电子病历数据进行研究的挑战的访谈研究。

AMIA ... Annual Symposium proceedings. AMIA Symposium Pub Date : 2024-01-11 eCollection Date: 2023-01-01
Sonia Priou, Guillaume Lame, Marija Jankovic, Emmanuelle Kempf
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引用次数: 0

摘要

越来越多的医院开发了临床数据仓库 (CDW),以获取电子病历数据。对临床数据仓库投资的快速增长表明,医疗保健领域确实存在创新潜力。然而,由于使用 CDW 的研究人员面临许多挑战,CDW 能否兑现其承诺仍未得到证实。为了更好地了解这些挑战以及如何克服它们,我们对电子病历数据专家进行了一系列半结构化访谈。在本文中,我们将分享正在进行的访谈研究的一些初步结果。通过对访谈记录的分析,我们发现了两大主题:一是基础设施在数据及其生成方式方面的重要性,二是让护理、临床研究和数据科学协同工作的难度。最后,根据专家们的经验,提出了几项使用社区数据中心的建议。
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"In conferences, everyone goes 'health data is the future' ": an interview study on challenges in re-using EHR data for research in Clinical Data Warehouses.

More and more hospital Clinical Data Warehouses (CDWs) are developed to gain access to EHR data. The rapid growth of investments in CDWs suggest a real potential for innovation in healthcare. However, it is still not confirmed that CDWs will deliver on their promises as researchers working with CDWs face many challenges. To gain a better understanding of these challenges and how to overcome them, we conducted a series of semi-structured interviews with EHR data experts. In this article, we share some initial results from the ongoing interview study. Two main themes emerged from the analysis of the transcripts of the interviews: the importance of infrastructures in terms of data and how it is generated, and the difficulty to make care, clinical research, and data science work together. Finally, based on the experts' experience, several recommendations were identified when using a CDW.

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