儿科肿瘤临终关怀:全面回顾。

Ali Tafazoli, Katharine Cronin-Wood
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引用次数: 0

摘要

儿科安宁疗护是当前医学文献中的一个新术语。在肿瘤科环境中实施儿科临终关怀是一个广阔而又专业的研究和实践领域。然而,它也存在着大量的不确定性、不足和未探索的部分。该领域缺乏全球公认的定义、原则和指南,这对全球有临终关怀需求的儿童的临终体验质量产生了不利影响。为了弥补这一不足,我们对科学文献进行了全面回顾,从 PubMed 数据库中提取并汇编了有关儿科肿瘤临终关怀的现有但稀少的数据。通过系统化的方法,我们建立了一个条理清晰的结构,介绍了基本要素,强调了并发症,并揭示了这一关键领域中隐藏的差距。这一结构化框架包括九个主要类别,包括总体思想、人口规格、父母和家庭的角色、社会心理问题、财务并发症、服务地点、涉及的专科、法规和质量改进。该平台可作为宝贵的资源,为儿科肿瘤临终关怀的未来实验和实践奠定科学可靠的基础。
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Pediatric Oncology Hospice: A Comprehensive Review.

Pediatric hospice is a new terminology in current medical literature. Implementation of pediatric hospice care in oncology setting is a vast but subspecialized field of research and practice. However, it is accompanied by substantial uncertainties, shortages and unexplored sections. The lack of globally established definitions, principles, and guidelines in this field has adversely impacted the quality of end-of-life experiences for children with hospice needs worldwide. To address this gap, we conducted a comprehensive review of scientific literature, extracting and compiling the available but sparse data on pediatric oncology hospice from the PubMed database. Our systematic approach led to development of a well-organized structure introducing the foundational elements, highlighting complications, and uncovering hidden gaps in this critical area. This structured framework comprises nine major categories including general ideology, population specifications, role of parents and family, psychosocial issues, financial complications, service locations, involved specialties, regulations, and quality improvement. This platform can serve as a valuable resource in establishing a scientifically reliable foundation for future experiments and practices in pediatric oncology hospice.

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