利用社会生态模型对埃塞俄比亚癌症患者的社会心理挑战进行定性研究。

IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Qualitative Health Research Pub Date : 2024-07-01 Epub Date: 2024-01-16 DOI:10.1177/10497323231219409
Abigiya Wondimagegnehu, Mathewos Assefa, Solomon Teferra, Eva J Kantelhardt, Bradley Zebrack, Adamu Addissie
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引用次数: 0

摘要

癌症诊断和治疗可能会给患者带来身体上的痛苦,扰乱他们的社交和工作生活。了解这些问题的严重程度是满足患者需求的关键,但在资源有限的环境中,具体的社会心理挑战尚未得到很好的研究。我们在埃塞俄比亚首都和两个地区开展了一项定性研究,旨在探讨癌症患者面临的社会心理挑战。共对癌症患者、医疗专业人员、社区代表和宗教领袖进行了 14 次深度访谈 (IDI) 和 16 次焦点小组讨论 (FGD)。访谈和讨论使用了四份不同的访谈指南。所有转录文件、现场笔记和反思性备忘录均输入 NVivo 12 软件,并采用社会生态模式进行演绎式主题分析,以总结主要研究结果。在个人层面,情绪困扰、自杀风险、否认和拒绝治疗在确诊后立即被发现,而绝望、抑郁和对死亡的恐惧则是治疗过程中普遍报告的社会心理挑战。在人际交往层面,家庭成员参与重大治疗决策的情况得到了认可。我们的研究结果还显示,癌症患者从家庭成员和亲密朋友那里获得了强有力的社会支持。在社区中,传统医学和宗教仪式被认为是癌症的替代治疗方法。研究结果表明,咨询和心理教育对癌症患者、家庭成员和好友至关重要。应通过与宗教领袖和传统治疗师合作来实施提高认识计划。
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A Qualitative Study on Psychosocial Challenges of Patients With Cancer in Ethiopia Using the Social-Ecological Model.

Cancer diagnosis and treatment can be physically arduous, disrupting patients' social and work lives. Understanding the extent of these problems is key to addressing patients' needs, but specific psychosocial challenges have not yet been well studied in resource-limited settings. A qualitative study was conducted in the capital and two regions of Ethiopia with the aim of exploring psychosocial challenges among cancer patients. A total of 14 in-depth interviews (IDIs) and 16 focus group discussions (FGDs) were done with cancer patients, health professionals, community representatives, and religious leaders. Four separate interview guides were used to facilitate the interviews and discussions. All transcribed documents, field notes, and reflexive memos were entered into NVivo 12 software, and deductive thematic analysis using the social-ecological model was applied to summarize the main findings. At an individual level, emotional distress, suicidal risk, denial, and refusal of treatment were identified immediately after diagnosis while hopelessness, feeling depressed, and fear of death were commonly reported psychosocial challenges during the course of treatment. Involvement of family members in major treatment decisions was recognized at an interpersonal level. Our result also revealed that cancer patients had strong social support from family members and close friends. In the community, traditional medicine and religious rituals were considered an alternative treatment for cancer. The findings indicate that counselling and psychoeducation are crucial for cancer patients, family members, and close friends. Awareness creation programmes should be delivered through collaboration with religious leaders and traditional healers.

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来源期刊
CiteScore
6.80
自引率
6.20%
发文量
109
期刊介绍: QUALITATIVE HEALTH RESEARCH is an international, interdisciplinary, refereed journal for the enhancement of health care and to further the development and understanding of qualitative research methods in health care settings. We welcome manuscripts in the following areas: the description and analysis of the illness experience, health and health-seeking behaviors, the experiences of caregivers, the sociocultural organization of health care, health care policy, and related topics. We also seek critical reviews and commentaries addressing conceptual, theoretical, methodological, and ethical issues pertaining to qualitative enquiry.
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