弯道超车:人们如何利用日常资源,以治疗为目的,协商癌症治疗后的康复问题。

IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Qualitative Health Research Pub Date : 2024-06-01 Epub Date: 2024-01-17 DOI:10.1177/10497323231219389
Alison Bravington, Miriam Johnson, Una Macleod
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引用次数: 0

摘要

与前几十年相比,现在有更多的癌症患者接受了以治愈为目的的治疗,但对大多数人来说,这涉及到重大的影响,人们需要从这些影响中恢复心理、社会和身体健康。这项纵向照片诱导访谈研究采用基础理论来解释从专科治疗中出院的人如何利用日常的社会和物质资源在家中处理这一过程。康复被视为人生道路上的一条曲线,需要逐步调整方向,利用社会世界和家庭资源来校准这一过程。研究结果分为三个阶段:(1) 对诊断和治疗做出反应,(2) 利用社会资源创造意义,(3) 发展康复资产。在治疗过程中,参与者利用过去的身份来强化自我意识,而个性化的医疗保健沟通则为这一过程提供了支持。在治疗后的几周内,参与者从家庭、工作场所和门诊遇到的癌症观点中构建了新的理解框架。康复过程包括个人变化的协商、亲密关系的重新协商,以及利用日常资源重新获得三种感觉:控制、舒适和连续性。在治疗接近尾声时,对能够帮助人们应对这一具有挑战性阶段的资产进行个性化探索,将使支持性护理受益匪浅。可以通过围绕每个人的身份、社会世界和可用的日常资源进行个性化讨论,探索和评估自我护理(在日常生活中保持健康和幸福)的可能性。
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Turning a Curve: How People Use Everyday Resources to Negotiate Recovery From Cancer Treatment With Curative Intent.

Many more cancers are treated with intent to cure now than in previous decades, but for most, this involves significant effects from which people need to recover psychologically and socially, as well as physically. This longitudinal photo-elicitation interview study uses grounded theory to explain how people discharged from specialist care made use of everyday social and material resources to manage this process at home. Recovery is presented as a curve in life's pathway requiring gradual reorientation, drawing on social worlds and domestic resources to calibrate this process. Findings are described in three stages: (1) responding to diagnosis and treatment, (2) using social resources for meaning-making, and (3) developing assets for recovery. During treatment, participants drew on past identities to reinforce their sense of self, and personalized health care communication supported this process. In the weeks after treatment, new frameworks of understanding were constructed from perspectives on cancer encountered in the family, workplace, and outpatient clinics. Recovery processes included the negotiation of personal change, the renegotiation of close relationships, and the use of everyday resources to regain three sensations: control, comfort, and continuity. Supportive care would benefit from an individualized exploration of the assets that can help people to negotiate this challenging phase as treatment comes to a close. Possibilities for self-care (the maintenance of health and well-being in the context of everyday life) can be explored and assessed through personalized discussion around the identities, social worlds, and everyday resources available to each individual.

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来源期刊
CiteScore
6.80
自引率
6.20%
发文量
109
期刊介绍: QUALITATIVE HEALTH RESEARCH is an international, interdisciplinary, refereed journal for the enhancement of health care and to further the development and understanding of qualitative research methods in health care settings. We welcome manuscripts in the following areas: the description and analysis of the illness experience, health and health-seeking behaviors, the experiences of caregivers, the sociocultural organization of health care, health care policy, and related topics. We also seek critical reviews and commentaries addressing conceptual, theoretical, methodological, and ethical issues pertaining to qualitative enquiry.
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