增强社区能力:沙特阿拉伯卡西姆的吉兰-巴雷综合征(GBS)认识和教育活动

Mona Alromaihi
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摘要

背景:吉兰-巴雷综合征(GBS)是周围神经系统最常见的急性自身免疫性疾病。在沙特阿拉伯,吉兰-巴雷综合征很少受到关注。吉兰-巴雷综合征会引起急性弛缓性麻痹,并可能导致呼吸衰竭。因此,需要尽早诊断和治疗。GBS 是一种没有国际标准的临床诊断,需要很高的悬浮诊断指数。它的临床表现具有异质性,可能会延误诊断。目的:本研究旨在根据在线自填问卷获得的数据,对卡西姆地区对 GBS 表现的认知水平进行分析性横断面研究。材料和方法:本研究采用分析性横断面设计,侧重于通过在线自填问卷收集数据,以评估卡西姆地区对 GBS 表现的认识程度。研究随机抽取了至少 926 名参与者。结果研究显示,在 926 名参与者中,112 人熟悉 GBS。较年轻的参与者对该疾病有更多的了解。值得注意的是,62.5% 没有医学背景的人知道 GBS。约 75% 的人与 GBS 患者有过接触,这可能会影响他们对 GBS 的认识。误解依然存在,只有 19.6% 的人认识到 GBS 的典型发病持续时间。61.6%的人认识到急诊的重要性,但只有29.5%的人认为急诊室是合适的治疗场所。结论调查结果揭示了人们对 GBS 的认识和误解。加强教育对于更好地理解和管理至关重要。
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Empowering Communities: Guillain–Barré Syndrome (GBS) Awareness and Education in Qassim, Saudi Arabia
Background: Guillain–Barré syndrome (GBS) is the most common acute autoimmune disease of peripheral nervous system. GBS has received little attention in Saudi Arabia. GBS causes an acute flaccid paralysis that may lead to respiratory failure. So, it requires early diagnosis and management. GBS is a clinical diagnosis which has no international criteria and needs a high index of suspension for diagnosis. It is characterized by a heterogeneous group of clinical presentations that may delay the diagnosis. Objective: this study aimed to conduct an analytical, cross-sectional study based on the data obtained from the online self-administrated questionnaire about the level of awareness of GBS presentation in Qassim region. Materials and methods: This study follows an analytical, cross-sectional design, focusing on data collected through an online self-administered questionnaire to assess awareness of GBS presentation in Qassim region. The study comprised a randomly selected sample of at least 926 participants. Results: The study revealed among 926 participants, 112 were familiar with GBS. Younger participants showed greater awareness. Notably, 62.5% without medical backgrounds knew about GBS. About 75% had personal contact with GBS patients, possibly influencing their awareness. Misconceptions persisted, with only 19.6% recognizing GBS's typical onset duration. Urgency was recognized by 61.6%, but only 29.5% identified the ER as the right care setting. Conclusion: The results unveiled a mix of awareness and misconceptions about GBS. Strengthening education is crucial for better understanding and management.
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