患者报告结果衡量标准及其在近期小儿外科研究中应用的叙述性回顾:增进知识,为该领域提供新视角。

IF 1.5 3区 医学 Q2 PEDIATRICS European Journal of Pediatric Surgery Pub Date : 2024-04-01 Epub Date: 2024-01-25 DOI:10.1055/s-0043-1778108
Olivia K C Spivack, Michaela Dellenmark-Blom, Jens Dingemann, Chantal A Ten Kate, Vuokko Wallace, Wichor M Bramer, Julia H Quitmann, Andre Rietman
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引用次数: 0

摘要

导言:患者报告的结果测量(PROMs)可用于研究和临床护理,以加深我们对患者重要结果的了解。这篇叙述性综述旨在描述近期儿科手术研究中使用的PROM,识别并描述心理计量学上可靠的PROM,概述从儿科患者意见中得出的PROM,并为未来研究提出建议:通过检索发现了2021年至2023年8月期间发表的文章,这些文章描述了至少一种有效或可靠的PROM在儿童肛门直肠畸形、胆道闭锁、先天性膈疝、十二指肠闭锁、食道闭锁、腹壁缺损、赫氏病、骶尾部畸胎瘤和短肠综合征等疾病中的可用性和/或使用情况。文章根据其应用 PROMs 的目的进行分类。结果:在确定的 345 篇文章中,49 篇符合纳入标准。其中 17 篇侧重于食道闭锁,14 篇侧重于赫氏病。共鉴定出 29 篇 PROMs,其中 12 篇被认为在心理测量学上是可靠的。在主要项目的生成过程中,利用患者的意见开发了 7 个心理测量稳健的 PROM。大多数 PROM 都用于促进对病情和/或治疗的理解,而开发或进行心理测量学评估的 PROM 则较少。没有对 PROM 进行影响评估或将其纳入实施研究:本综述揭示了近期儿科手术研究中 PROMs 应用方面的不足。重点应放在开发和使用心理测量学上可靠的 PROMs、扩大涵盖疾病的范围、进行影响评估以及评估实施策略上。
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A Narrative Review of Patient-Reported Outcome Measures and Their Application in Recent Pediatric Surgical Research: Advancing Knowledge and Offering New Perspectives to the Field.

Introduction:  Patient-reported outcome measures (PROMs) can be employed in both research and clinical care to enhance our understanding of outcomes that matter to patients. This narrative review aims to describe PROM use in recent pediatric surgical research, identify and describe psychometrically robust PROMs, providing an overview of those derived from pediatric patient input, and make recommendations for future research.

Materials and methods:  A search was conducted to identify articles published from 2021 to August 2023 describing the availability and/or use of at least one valid or reliable PROM in children with conditions including anorectal malformations, biliary atresia, congenital diaphragmatic hernia, duodenal atresia, esophageal atresia, abdominal wall defects, Hirschsprung's disease, sacrococcygeal teratoma, and short bowel syndrome. Articles were categorized based on their objectives in applying PROMs. Psychometrically robust PROMs were identified and described.

Results:  Out of the 345 articles identified, 49 met the inclusion criteria. Seventeen focused on esophageal atresia and 14 on Hirschsprung's disease. Twenty-nine PROMs were identified, with 12 deemed psychometrically robust. Seven psychometrically robust PROMs were developed using patient input in the primary item generation. Most PROMs were applied to advance understanding of conditions and/or treatment and fewer were developed or psychometrically evaluated. No PROMs were assessed for their impact or incorporated into an implementation study.

Conclusions:  This review reveals gaps in the application of PROMs in recent pediatric surgical research. Emphasis should be placed on the development and utilization of psychometrically robust PROMs, broadening the scope of covered diseases, conducting impact assessments, and evaluating implementation strategies.

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来源期刊
CiteScore
3.90
自引率
5.60%
发文量
66
审稿时长
6-12 weeks
期刊介绍: This broad-based international journal updates you on vital developments in pediatric surgery through original articles, abstracts of the literature, and meeting announcements. You will find state-of-the-art information on: abdominal and thoracic surgery neurosurgery urology gynecology oncology orthopaedics traumatology anesthesiology child pathology embryology morphology Written by surgeons, physicians, anesthesiologists, radiologists, and others involved in the surgical care of neonates, infants, and children, the EJPS is an indispensable resource for all specialists.
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