海湾合作委员会(GCC)国家偏头痛患者未得到满足的需求。

IF 4.1 2区 医学 Q1 CLINICAL NEUROLOGY Pain and Therapy Pub Date : 2024-04-01 Epub Date: 2024-01-27 DOI:10.1007/s40122-024-00576-8
Abdulrazaq Albilali, Jasem Al-Hashel, Ziad Elchami, Suhail Al Rukn, Abu Baker Al Madani, Muna AlTunaiji, Jalal Al Ali, Mohamed Fathy, Jean Joury
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引用次数: 0

摘要

海湾合作委员会(GCC)国家的医护人员和公众可能低估了偏头痛的严重程度及其对患者生活的影响,在提供偏头痛医疗护理方面可能存在尚未满足的需求。本文报告了阿联酋神经病学协会组织的偏头痛专家及其患者会议的主要成果,该会议旨在进一步了解患者的诊断和治疗过程以及偏头痛对日常生活的影响程度。患者的故事表明,偏头痛造成的负担被低估了,偏头痛没有被普遍认为是一种疾病,诊断延迟和诊断错误的情况很普遍,而症状控制的好坏往往取决于运气,而不是良好的管理。建议开展疾病宣传活动,提高社会对偏头痛的认识,减少对偏头痛患者的歧视。为改善偏头痛患者的医疗保健系统体验而提出的建议包括针对患者和医生的教育活动,以及弥补偏头痛诊断和治疗差距的活动。
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Unmet Needs of Patients Living with Migraine in the Gulf Cooperation Council (GCC) Countries.

The scale of migraine and its impact on the lives of patients in the Gulf Cooperation Council (GCC) countries may be underestimated by healthcare professionals and the public and unmet needs in the provision of migraine medical care may exist. This article reports the key outcomes from a meeting of migraine specialists and their patients organised by the Emirates Neurology Society to learn more about the patient diagnosis and treatment journey and the extent to which migraine affects daily life. Patient stories indicate that the burden of migraine is underestimated, migraine is not generally recognised as a disease, delayed and incorrect diagnoses are common, and that achieving symptom control is often more a question of good luck rather than good management. Disease awareness campaigns are recommended to elevate societal understanding of migraine and reduce stigma toward patients affected by migraine. Recommendations for an improved healthcare system experience for patients affected by migraine include education initiatives targeting patients and physicians as well as initiatives to address gaps in the diagnosis and treatment of migraine.

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来源期刊
Pain and Therapy
Pain and Therapy CLINICAL NEUROLOGY-
CiteScore
6.60
自引率
5.00%
发文量
110
审稿时长
6 weeks
期刊介绍: Pain and Therapy is an international, open access, peer-reviewed, rapid publication journal dedicated to the publication of high-quality clinical (all phases), observational, real-world, and health outcomes research around the discovery, development, and use of pain therapies and pain-related devices. Studies relating to diagnosis, pharmacoeconomics, public health, quality of life, and patient care, management, and education are also encouraged. Areas of focus include, but are not limited to, acute pain, cancer pain, chronic pain, headache and migraine, neuropathic pain, opioids, palliative care and pain ethics, peri- and post-operative pain as well as rheumatic pain and fibromyalgia. The journal is of interest to a broad audience of pharmaceutical and healthcare professionals and publishes original research, reviews, case reports, trial protocols, short communications such as commentaries and editorials, and letters. The journal is read by a global audience and receives submissions from around the world. Pain and Therapy will consider all scientifically sound research be it positive, confirmatory or negative data. Submissions are welcomed whether they relate to an international and/or a country-specific audience, something that is crucially important when researchers are trying to target more specific patient populations. This inclusive approach allows the journal to assist in the dissemination of all scientifically and ethically sound research.
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