1 型糖尿病新成人患者的经济压力:结合癌症研究经验教训的微型综述

K. Wentzell, Kathryn E. Nagel
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摘要

在美国成年人中,18-30 岁的失业率最高,收入最低,也最有可能没有保险。实现经济独立是这一年龄组的核心发展任务,但对于 1 型糖尿病(T1D)患者来说,胰岛素和糖尿病用品的高昂费用以及以就业为基础、安全网极低的保险模式,都可能使这一任务成为一项艰巨的挑战。在新出现的成人 T1D 患者中,与费用相关的不坚持糖尿病管理的情况尤其严重,并会导致严重后果,如糖尿病酮症酸中毒(DKA),甚至死亡。与疾病相关的客观经济负担和主观经济困扰并非糖尿病所独有;在癌症护理中,这种结构被称为经济毒性。研究人员发现,新近罹患癌症的成年人尤其容易受到财务毒性的影响。这些研究有助于为癌症患者的护理模式提供信息,以减轻与费用相关的压力。这篇微型综述旨在简要描述有关新发成人 T1D 患者经济压力的科学现状,并探讨癌症学术研究中的相似之处,这些相似之处有助于指导未来的糖尿病护理工作,从而减少健康不公平现象,推动研究向前发展,改善临床护理,并为政策辩论提供信息。
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Financial stress in emerging adults with type 1 diabetes: a mini review integrating lessons from cancer research
Amongst adults in the United States, those ages 18-30 have the highest unemployment rates, the lowest incomes, and are the most likely to be uninsured. Achieving financial independence is a core developmental task for this age group, but for those with type 1 diabetes (T1D), the high costs of insulin and diabetes supplies as well as an employment-based insurance model with minimal safety net can make this a formidable challenge. Cost-related non-adherence to diabetes management is particularly high in emerging adults with T1D and is associated with severe consequences, such as diabetic ketoacidosis (DKA) and even death. Objective financial burden and subjective financial distress related to illness are not unique to diabetes; in cancer care this construct is termed financial toxicity. Researchers have identified that emerging adults with cancer are particularly vulnerable to financial toxicity. Such research has helped inform models of care for cancer patients to mitigate cost-related stress. This mini review aims to briefly describe the state of the science on financial stress for emerging adults with T1D and explore parallels in cancer scholarship that can help guide future work in diabetes care to reduce health inequity, drive research forward, improve clinical care, and inform policy debates.
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