为患有饮食失调症的青少年提供全年龄段服务,是否就能解决过渡时期的问题?

IF 3.9 2区 心理学 Q1 PSYCHIATRY European Eating Disorders Review Pub Date : 2024-02-05 DOI:10.1002/erv.3072
Maria Nicula, Jennifer Couturier
{"title":"为患有饮食失调症的青少年提供全年龄段服务,是否就能解决过渡时期的问题?","authors":"Maria Nicula,&nbsp;Jennifer Couturier","doi":"10.1002/erv.3072","DOIUrl":null,"url":null,"abstract":"<p>In a recent issue of the European Eating Disorders Review, Newell (<span>2023</span>) reports on the experiences of implementing an all-age eating disorder (ED) service. In our commentary of their work, we will begin with a summary, discuss what we consider to be the strengths, shortcomings, and obstacles of an all-age ED service, and conclude with alternative solutions. Before beginning, we would like to note that our perspective of ED transitions may introduce Canadian nuances to our commentary, given our differing healthcare systems.</p><p>The transition from child and adolescent (or paediatric) to adult ED services, that is often determined by turning 18-years-old, has been well-established as a distressing and problematic experience for patients, families, and healthcare providers alike. Newell (<span>2023</span>) presented various reasons for developing their all-age programme, including the long interruptions in ED care, uncertainty held by adolescents and parents about the upcoming change, and differences between services that were seen in their traditional paediatric and adult care systems.</p><p>In response to the current state of poor transitions for EDs, Newell (<span>2023</span>) developed an all-age ED service in Dorset, England. To do this, an interdisciplinary group of clinicians from an adult ED community service as well as the child and adolescent mental health service in Dorset were invited to join a ‘transitions’ team. Some staff were concerned that they did not have the appropriate skills to work with the other age group, or a wide age range, even if they had the proper training. This is why the invitation to join the ‘transitions’ team was voluntary. Members of this team joined because they felt confident and knowledgeable in applying the main modes of treatment [enhanced cognitive behavioural therapy (CBT-E) and family-based therapy (FBT)] across the age range. This core group was trained to provide care across both settings through regular clinical supervision by professionals, internal and external, with the required training. As the training progressed, the ‘transitions’ team reviewed new referrals and supported staff to continue providing care to existing patients who were approaching their 18<sup>th</sup> birthday. The issue of how funding for the services would be split was addressed; there were separate budgets for each team, and flexibility was offered when needed. Over time, less and less supervision was needed because all members of the all-age ED team were competent in the main treatment modalities and the ‘transitions’ team disbanded.</p><p>Newell (<span>2023</span>) noted multiple facilitators that allowed for the implementation of their all-age ED service. Firstly, there was strong buy-in from both services, and a core team of individuals were willing to be the ‘transition’ experts. This format allowed those who felt more comfortable remaining in their original service could still do so. In addition, the change to an all-age ED service was well-received by Dorset's single mental health services commissioner and was well-managed administratively, as one person handled the merged identity of the new programme internally and externally.</p><p>The author describes the all-age service as a potential solution for transition issues moving forward. It is noted that these programs are starting to be supported in available literature (Newell, <span>2023</span>). Another benefit of the all-age ED service is that the typical parameters for evidence-based treatments can be expanded to a wider age range (e.g., FBT for individuals who are over the age 18, and CBT for those under), thus meeting the unique needs of patients. In addition, current UK protocols for transition are quite costly in terms of time and effort, such as requiring adolescents to receive a 6-month period of parallel care. With an all-age ED service, there would be no duplication of effort from two teams as there would be no transition. Lastly, the author concluded that they now have a cohort of highly skilled staff who can treat a wider range of patients (Newell, <span>2023</span>). To conclude, this paper highlighted the visible benefits of their new programme locally and discussed the potential advantages for an all-age service for this clinical population, while also underscoring that research is still needed to evaluate the impact of these programs.</p><p>To start, there is an undeniable need for a solution for the poor transitions experienced by transition-age youth with EDs. Arguably, this group requires a seamless transition more than other clinical populations due to the denial-based nature of EDs (Gregertsen et al., <span>2017</span>). The cut-off age of 18 years may have been indicative of adulthood when it was established. But, in the present-day, this arbitrary threshold feels vestigial given the different nature of experiences faced by youth today. We also agree that the approach that will yield the most successful ED care is to tailor services to meet patient needs, rather than requiring patients to adapt to the care that is available.</p><p>That said, the implementation of an all-age ED service brings with it some obstacles. In Newell's report (<span>2023</span>), it was stated that members of the ‘transitions’ team would receive clinical supervision from internal and external transition experts. However, these providers were not originally trained to treat both age groups, further evidenced by the discomfort of some clinicians in the study to shift from their area of expertise. In some professions working with EDs, their registered college only allows professionals to work with the age group they were trained for (e.g., physicians, psychologists). Even among those for whom certification is not age-based (e.g., social workers, psychotherapists, dieticians), these professionals are typically expected to specialise with either children and adolescents or adults, as the skillsets to engage with these groups and rules of treatment vary widely. Further, it was stated that the ‘transitions’ team would support clinicians in either service to support a transition-age youth, meaning that some patient-facing therapists—especially those on the paediatric end—would be working with both age ranges. Lastly, the final concern pertaining to treatment delivery is that of fidelity; if some clinicians are now expected to treat a wider age range of patients, thus taking on new, complex treatment modalities, there may be a risk of reduced adherence to each model by virtue of there being multiple treatments they are expected to provide. The quantity of treatments that a clinician provides should not sacrifice the quality with which they deliver each of those treatments.</p><p>Next, the author underscored how this developmental period of young adulthood is associated with many other life changes, which is especially challenging for youth with psychiatric or ED concerns (Newell, <span>2023</span>); this is also reflected in other research (Dimitropoulos et al., <span>2013</span>). Although this could mean a healthcare transition should be avoided to alleviate some of this change, transitions are ultimately a normal part of life and would likely strengthen self-management skills to navigate healthcare systems as an adult and learn first-hand how to take their treatment into their own hands. The Society of Paediatric Nurses referred to healthcare transition services as ensuring that “adolescents and emerging adults learn the self-management knowledge and skills necessary to manage their daily treatment needs as independently as possible and become a literate health consumer” (Betz, <span>2017</span>, p. 161). Even if paediatric patients with EDs were receiving their treatment from an all-age service, they may be experiencing life changes that may require them to move their care anyways (e.g., moving to a new city for post-secondary education). Individuals with EDs usually also experience comorbidities, such as medical or psychiatric (Erdur et al., <span>2012</span>; Salbach-Andrae et al., <span>2008</span>); unless transition is eliminated for the care they may receive for these other health concerns, it may be more confusing for them to undergo a healthcare transition for some of their needs, but not others. Although hard, we believe transitions to be necessary for development, as this allows young adults to progress through the natural and inevitable stress of developing their own healthcare management skills.</p><p>The intention behind and implementation of the author's all-age ED service was founded in strong feedback from stakeholders that a change was needed to avoid traumatic transitions (Newell, <span>2023</span>). However, even the author noted how much of a role various facilitators played into the feasibility and success of their service, such as only having a single commissioner to set up this programme or strong buy-in among providers from both original services. In other contexts, however, there may be additional obstacles in place that may limit implementation success such as administrative red tape in larger regions, healthcare systems that may have a different structure for approval of new programs, insufficient provider buy-in, and the lack of funds or resources. This reality threatens the generalisability of such a service when applied to other sites.</p><p>Lastly, the article discussed the need for more research to evaluate this newly proposed solution and compare it to current transition procedures. It is possible that an all-age service is the ideal solution to remove the problem of transition, but additional evidence is needed to support this shift. Qualitative research may shed light upon new challenges and benefits experienced when an all-age ED service is implemented, while quantitative research, such as pre-post designs or comparative trials, can establish a difference in tangible outcomes (e.g., reductions in ED symptomology by age 19, self-management skills).</p><p>This example of a successful implementation of all-age ED service by Newell (<span>2023</span>) presents a strong, novel solution for current difficulties regarding ED transitions. There are understandably some concerns with this new solution, such as the ones we have presented above, but this approach may still be appropriate for some contexts. Until more research is dedicated to exploring the effectiveness of and experiences with an all-age ED service, we propose some alternate ways we can improve our current transition supports in the interim.</p><p>The first strategy we suggest for improving transition using the age-separated structures that are currently in place is for paediatric and adult ED programs to dissolve the strict age cut-off of 18 years and, instead, use a flexible age approach. This has been recommended for youth with complex healthcare needs more generally (Toulany et al., <span>2022</span>) as well as for adolescents with EDs (Nadarajah et al., <span>2021</span>). Logistically-speaking, extending the care of adolescents receiving paediatric care by asking their therapist to continue working with them would require a change in infrastructure, such as additional space and staff. Conversely, it is possible that it would be more feasible in some contexts for the adult programme to accept youth who are younger than 18 into their programme. To support either or both of these suggested changes, the overseeing administrative and funding bodies need to support this shift by offering the resources, finances, and personnel necessary to carry this out successfully.</p><p>Another suggested way transitions may be improved would be to facilitate long-standing relationships between paediatric and adult programs located in the same regions; this should also be encouraged and funded by the responsible governing healthcare administration bodies. Borrowing from Newell's (<span>2023</span>) process, paediatric and adult teams could create their own internal ‘transitions’ teams that communicate closely with both programs for a more seamless transfer of care. Depending upon what these unions decide, paediatric teams may agree to standardise the initiation of transition-related conversations with patients and parents to start much earlier (e.g., a notification in the medical record system to engage in this conversation with a patient upon turning 16 or 17 years old). If a transition is something that the adolescent-parent pair would like to consider, they could be placed on the waitlist of the desired adult ED care programme to counteract the reality of long waitlists and reduce the risk of a break in care for adolescents.</p><p>Lastly, there are a variety of suggested strategies offered in the literature that could be added to paediatric and adult programs to assist with transitions, such as incorporating a transition navigator, peer support for transitioning adolescents, peer support for parents, involvement of the family physician, and having a transition meeting with both providers (Nadarajah et al., <span>2021</span>; Nicula et al., <span>2023</span>).</p><p>In conclusion, the all-age ED solution proposed by Newell (<span>2023</span>) addresses some of the issues with transition; however, it may not be feasible in all settings. We acknowledge that our suggestion to improve existing transitions does not fully address this issue, but it has been posed here as an alternate to the all-age ED service. In the same way that Newell (<span>2023</span>) notes their service's intention to attend to the needs of the patients rather than asking them to adapt to the care offered, we suggest that each programme's approach—specifically, whether they take on an all-age ED service or enhance transitions within two separate programs—carefully consider many factors, such as the capacity, context, type of healthcare system or funding structure, and the nature of the patients and families they service.</p><p>The authors declare no conflicts of interest.</p>","PeriodicalId":48117,"journal":{"name":"European Eating Disorders Review","volume":"32 3","pages":"606-609"},"PeriodicalIF":3.9000,"publicationDate":"2024-02-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/erv.3072","citationCount":"0","resultStr":"{\"title\":\"Is an all-age service the answer to poor transitions for adolescents with eating disorders?\",\"authors\":\"Maria Nicula,&nbsp;Jennifer Couturier\",\"doi\":\"10.1002/erv.3072\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p>In a recent issue of the European Eating Disorders Review, Newell (<span>2023</span>) reports on the experiences of implementing an all-age eating disorder (ED) service. In our commentary of their work, we will begin with a summary, discuss what we consider to be the strengths, shortcomings, and obstacles of an all-age ED service, and conclude with alternative solutions. Before beginning, we would like to note that our perspective of ED transitions may introduce Canadian nuances to our commentary, given our differing healthcare systems.</p><p>The transition from child and adolescent (or paediatric) to adult ED services, that is often determined by turning 18-years-old, has been well-established as a distressing and problematic experience for patients, families, and healthcare providers alike. Newell (<span>2023</span>) presented various reasons for developing their all-age programme, including the long interruptions in ED care, uncertainty held by adolescents and parents about the upcoming change, and differences between services that were seen in their traditional paediatric and adult care systems.</p><p>In response to the current state of poor transitions for EDs, Newell (<span>2023</span>) developed an all-age ED service in Dorset, England. To do this, an interdisciplinary group of clinicians from an adult ED community service as well as the child and adolescent mental health service in Dorset were invited to join a ‘transitions’ team. Some staff were concerned that they did not have the appropriate skills to work with the other age group, or a wide age range, even if they had the proper training. This is why the invitation to join the ‘transitions’ team was voluntary. Members of this team joined because they felt confident and knowledgeable in applying the main modes of treatment [enhanced cognitive behavioural therapy (CBT-E) and family-based therapy (FBT)] across the age range. This core group was trained to provide care across both settings through regular clinical supervision by professionals, internal and external, with the required training. As the training progressed, the ‘transitions’ team reviewed new referrals and supported staff to continue providing care to existing patients who were approaching their 18<sup>th</sup> birthday. The issue of how funding for the services would be split was addressed; there were separate budgets for each team, and flexibility was offered when needed. Over time, less and less supervision was needed because all members of the all-age ED team were competent in the main treatment modalities and the ‘transitions’ team disbanded.</p><p>Newell (<span>2023</span>) noted multiple facilitators that allowed for the implementation of their all-age ED service. Firstly, there was strong buy-in from both services, and a core team of individuals were willing to be the ‘transition’ experts. This format allowed those who felt more comfortable remaining in their original service could still do so. In addition, the change to an all-age ED service was well-received by Dorset's single mental health services commissioner and was well-managed administratively, as one person handled the merged identity of the new programme internally and externally.</p><p>The author describes the all-age service as a potential solution for transition issues moving forward. It is noted that these programs are starting to be supported in available literature (Newell, <span>2023</span>). Another benefit of the all-age ED service is that the typical parameters for evidence-based treatments can be expanded to a wider age range (e.g., FBT for individuals who are over the age 18, and CBT for those under), thus meeting the unique needs of patients. In addition, current UK protocols for transition are quite costly in terms of time and effort, such as requiring adolescents to receive a 6-month period of parallel care. With an all-age ED service, there would be no duplication of effort from two teams as there would be no transition. Lastly, the author concluded that they now have a cohort of highly skilled staff who can treat a wider range of patients (Newell, <span>2023</span>). To conclude, this paper highlighted the visible benefits of their new programme locally and discussed the potential advantages for an all-age service for this clinical population, while also underscoring that research is still needed to evaluate the impact of these programs.</p><p>To start, there is an undeniable need for a solution for the poor transitions experienced by transition-age youth with EDs. Arguably, this group requires a seamless transition more than other clinical populations due to the denial-based nature of EDs (Gregertsen et al., <span>2017</span>). The cut-off age of 18 years may have been indicative of adulthood when it was established. But, in the present-day, this arbitrary threshold feels vestigial given the different nature of experiences faced by youth today. We also agree that the approach that will yield the most successful ED care is to tailor services to meet patient needs, rather than requiring patients to adapt to the care that is available.</p><p>That said, the implementation of an all-age ED service brings with it some obstacles. In Newell's report (<span>2023</span>), it was stated that members of the ‘transitions’ team would receive clinical supervision from internal and external transition experts. However, these providers were not originally trained to treat both age groups, further evidenced by the discomfort of some clinicians in the study to shift from their area of expertise. In some professions working with EDs, their registered college only allows professionals to work with the age group they were trained for (e.g., physicians, psychologists). Even among those for whom certification is not age-based (e.g., social workers, psychotherapists, dieticians), these professionals are typically expected to specialise with either children and adolescents or adults, as the skillsets to engage with these groups and rules of treatment vary widely. Further, it was stated that the ‘transitions’ team would support clinicians in either service to support a transition-age youth, meaning that some patient-facing therapists—especially those on the paediatric end—would be working with both age ranges. Lastly, the final concern pertaining to treatment delivery is that of fidelity; if some clinicians are now expected to treat a wider age range of patients, thus taking on new, complex treatment modalities, there may be a risk of reduced adherence to each model by virtue of there being multiple treatments they are expected to provide. The quantity of treatments that a clinician provides should not sacrifice the quality with which they deliver each of those treatments.</p><p>Next, the author underscored how this developmental period of young adulthood is associated with many other life changes, which is especially challenging for youth with psychiatric or ED concerns (Newell, <span>2023</span>); this is also reflected in other research (Dimitropoulos et al., <span>2013</span>). Although this could mean a healthcare transition should be avoided to alleviate some of this change, transitions are ultimately a normal part of life and would likely strengthen self-management skills to navigate healthcare systems as an adult and learn first-hand how to take their treatment into their own hands. The Society of Paediatric Nurses referred to healthcare transition services as ensuring that “adolescents and emerging adults learn the self-management knowledge and skills necessary to manage their daily treatment needs as independently as possible and become a literate health consumer” (Betz, <span>2017</span>, p. 161). Even if paediatric patients with EDs were receiving their treatment from an all-age service, they may be experiencing life changes that may require them to move their care anyways (e.g., moving to a new city for post-secondary education). Individuals with EDs usually also experience comorbidities, such as medical or psychiatric (Erdur et al., <span>2012</span>; Salbach-Andrae et al., <span>2008</span>); unless transition is eliminated for the care they may receive for these other health concerns, it may be more confusing for them to undergo a healthcare transition for some of their needs, but not others. Although hard, we believe transitions to be necessary for development, as this allows young adults to progress through the natural and inevitable stress of developing their own healthcare management skills.</p><p>The intention behind and implementation of the author's all-age ED service was founded in strong feedback from stakeholders that a change was needed to avoid traumatic transitions (Newell, <span>2023</span>). However, even the author noted how much of a role various facilitators played into the feasibility and success of their service, such as only having a single commissioner to set up this programme or strong buy-in among providers from both original services. In other contexts, however, there may be additional obstacles in place that may limit implementation success such as administrative red tape in larger regions, healthcare systems that may have a different structure for approval of new programs, insufficient provider buy-in, and the lack of funds or resources. This reality threatens the generalisability of such a service when applied to other sites.</p><p>Lastly, the article discussed the need for more research to evaluate this newly proposed solution and compare it to current transition procedures. It is possible that an all-age service is the ideal solution to remove the problem of transition, but additional evidence is needed to support this shift. Qualitative research may shed light upon new challenges and benefits experienced when an all-age ED service is implemented, while quantitative research, such as pre-post designs or comparative trials, can establish a difference in tangible outcomes (e.g., reductions in ED symptomology by age 19, self-management skills).</p><p>This example of a successful implementation of all-age ED service by Newell (<span>2023</span>) presents a strong, novel solution for current difficulties regarding ED transitions. There are understandably some concerns with this new solution, such as the ones we have presented above, but this approach may still be appropriate for some contexts. Until more research is dedicated to exploring the effectiveness of and experiences with an all-age ED service, we propose some alternate ways we can improve our current transition supports in the interim.</p><p>The first strategy we suggest for improving transition using the age-separated structures that are currently in place is for paediatric and adult ED programs to dissolve the strict age cut-off of 18 years and, instead, use a flexible age approach. This has been recommended for youth with complex healthcare needs more generally (Toulany et al., <span>2022</span>) as well as for adolescents with EDs (Nadarajah et al., <span>2021</span>). Logistically-speaking, extending the care of adolescents receiving paediatric care by asking their therapist to continue working with them would require a change in infrastructure, such as additional space and staff. Conversely, it is possible that it would be more feasible in some contexts for the adult programme to accept youth who are younger than 18 into their programme. To support either or both of these suggested changes, the overseeing administrative and funding bodies need to support this shift by offering the resources, finances, and personnel necessary to carry this out successfully.</p><p>Another suggested way transitions may be improved would be to facilitate long-standing relationships between paediatric and adult programs located in the same regions; this should also be encouraged and funded by the responsible governing healthcare administration bodies. Borrowing from Newell's (<span>2023</span>) process, paediatric and adult teams could create their own internal ‘transitions’ teams that communicate closely with both programs for a more seamless transfer of care. Depending upon what these unions decide, paediatric teams may agree to standardise the initiation of transition-related conversations with patients and parents to start much earlier (e.g., a notification in the medical record system to engage in this conversation with a patient upon turning 16 or 17 years old). If a transition is something that the adolescent-parent pair would like to consider, they could be placed on the waitlist of the desired adult ED care programme to counteract the reality of long waitlists and reduce the risk of a break in care for adolescents.</p><p>Lastly, there are a variety of suggested strategies offered in the literature that could be added to paediatric and adult programs to assist with transitions, such as incorporating a transition navigator, peer support for transitioning adolescents, peer support for parents, involvement of the family physician, and having a transition meeting with both providers (Nadarajah et al., <span>2021</span>; Nicula et al., <span>2023</span>).</p><p>In conclusion, the all-age ED solution proposed by Newell (<span>2023</span>) addresses some of the issues with transition; however, it may not be feasible in all settings. We acknowledge that our suggestion to improve existing transitions does not fully address this issue, but it has been posed here as an alternate to the all-age ED service. In the same way that Newell (<span>2023</span>) notes their service's intention to attend to the needs of the patients rather than asking them to adapt to the care offered, we suggest that each programme's approach—specifically, whether they take on an all-age ED service or enhance transitions within two separate programs—carefully consider many factors, such as the capacity, context, type of healthcare system or funding structure, and the nature of the patients and families they service.</p><p>The authors declare no conflicts of interest.</p>\",\"PeriodicalId\":48117,\"journal\":{\"name\":\"European Eating Disorders Review\",\"volume\":\"32 3\",\"pages\":\"606-609\"},\"PeriodicalIF\":3.9000,\"publicationDate\":\"2024-02-05\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://onlinelibrary.wiley.com/doi/epdf/10.1002/erv.3072\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"European Eating Disorders Review\",\"FirstCategoryId\":\"102\",\"ListUrlMain\":\"https://onlinelibrary.wiley.com/doi/10.1002/erv.3072\",\"RegionNum\":2,\"RegionCategory\":\"心理学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"PSYCHIATRY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"European Eating Disorders Review","FirstCategoryId":"102","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1002/erv.3072","RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"PSYCHIATRY","Score":null,"Total":0}
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摘要

尽管如此,实施全年龄段 ED 服务也会带来一些障碍。纽厄尔的报告(2023 年)指出,"过渡 "团队成员将接受内部和外部过渡专家的临床指导。然而,这些医疗服务提供者最初并没有接受过治疗两个年龄组的培训,本研究中一些临床医生对脱离自己的专业领域感到不适应就进一步证明了这一点。在一些从事教育署工作的专业中,其注册的学院只允许专业人员从事其接受过培训的年龄组的工作(如医生、心理学家)。即使是那些认证不以年龄为基础的专业人员(如社会工作者、心理治疗师、营养师),这些专业人员通常也要专门从事儿童和青少年或成人的工作,因为与这些群体打交道的技能和治疗规则差别很大。此外,有人指出,"过渡 "小组将支持任一服务机构的临床医生为过渡年龄段的青少年提供支持,这意味着一些面向患者的治疗师--尤其是儿科治疗师--将同时为两个年龄段的患者提供服务。最后,与提供治疗有关的最后一个问题是治疗的忠实性;如果一些临床医生现在要治疗更多年龄段的病人,从而接受新的、复杂的治疗模式,那么由于他们要提供多种治疗,可能会降低对每种模式的依从性。临床医生提供的治疗数量不应牺牲他们提供每种治疗的质量。接下来,作者强调了青年期的发展如何与许多其他生活变化相关联,这对于患有精神疾病或 ED 问题的青年来说尤其具有挑战性(Newell,2023 年);这一点也反映在其他研究中(Dimitropoulos 等人,2013 年)。虽然这可能意味着应该避免医疗保健的过渡,以减轻这种变化,但过渡终究是生活的正常部分,而且很可能会加强自我管理技能,以便在成年后驾驭医疗保健系统,并亲身学习如何将治疗掌握在自己手中。儿科护士协会(Society of Paediatric Nurses)将医疗过渡服务称为确保 "青少年和新成人学习必要的自我管理知识和技能,尽可能独立地管理日常治疗需求,成为有文化的健康消费者"(Betz,2017 年,第 161 页)。即使患有 ED 的儿科患者在全年龄段服务机构接受治疗,他们也可能会经历生活上的变化,这可能要求他们无论如何都要转移治疗地点(例如,搬到新的城市接受高等教育)。ED 患者通常还合并有医疗或精神疾病(Erdur et al.尽管困难重重,但我们认为过渡对于发展来说是必要的,因为这可以让年轻人在发展自身医疗保健管理技能的自然和不可避免的压力中取得进步。然而,就连作者也注意到,在其服务的可行性和成功过程中,各种促进因素发挥了多大作用,例如,仅有一名专员负责制定该计划,或来自两个原始服务机构的医疗服务提供者的强烈支持。然而,在其他情况下,可能会有更多的障碍限制计划的成功实施,如较大地区的行政手续繁琐、医疗保健系统可能有不同的新计划审批结构、医疗服务提供者的支持力度不够、缺乏资金或资源等。最后,文章讨论了开展更多研究的必要性,以评估这一新提出的解决方案,并将其与当前的过渡程序进行比较。全年龄段服务可能是消除过渡问题的理想解决方案,但需要更多证据来支持这一转变。定性研究可能会揭示实施全年龄段急诊室服务所面临的新挑战和带来的益处,而定量研究,如前-后设计或比较试验,可以确定实际结果的差异(如 19 岁前急诊室症状的减少、自我管理技能)。
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Is an all-age service the answer to poor transitions for adolescents with eating disorders?

In a recent issue of the European Eating Disorders Review, Newell (2023) reports on the experiences of implementing an all-age eating disorder (ED) service. In our commentary of their work, we will begin with a summary, discuss what we consider to be the strengths, shortcomings, and obstacles of an all-age ED service, and conclude with alternative solutions. Before beginning, we would like to note that our perspective of ED transitions may introduce Canadian nuances to our commentary, given our differing healthcare systems.

The transition from child and adolescent (or paediatric) to adult ED services, that is often determined by turning 18-years-old, has been well-established as a distressing and problematic experience for patients, families, and healthcare providers alike. Newell (2023) presented various reasons for developing their all-age programme, including the long interruptions in ED care, uncertainty held by adolescents and parents about the upcoming change, and differences between services that were seen in their traditional paediatric and adult care systems.

In response to the current state of poor transitions for EDs, Newell (2023) developed an all-age ED service in Dorset, England. To do this, an interdisciplinary group of clinicians from an adult ED community service as well as the child and adolescent mental health service in Dorset were invited to join a ‘transitions’ team. Some staff were concerned that they did not have the appropriate skills to work with the other age group, or a wide age range, even if they had the proper training. This is why the invitation to join the ‘transitions’ team was voluntary. Members of this team joined because they felt confident and knowledgeable in applying the main modes of treatment [enhanced cognitive behavioural therapy (CBT-E) and family-based therapy (FBT)] across the age range. This core group was trained to provide care across both settings through regular clinical supervision by professionals, internal and external, with the required training. As the training progressed, the ‘transitions’ team reviewed new referrals and supported staff to continue providing care to existing patients who were approaching their 18th birthday. The issue of how funding for the services would be split was addressed; there were separate budgets for each team, and flexibility was offered when needed. Over time, less and less supervision was needed because all members of the all-age ED team were competent in the main treatment modalities and the ‘transitions’ team disbanded.

Newell (2023) noted multiple facilitators that allowed for the implementation of their all-age ED service. Firstly, there was strong buy-in from both services, and a core team of individuals were willing to be the ‘transition’ experts. This format allowed those who felt more comfortable remaining in their original service could still do so. In addition, the change to an all-age ED service was well-received by Dorset's single mental health services commissioner and was well-managed administratively, as one person handled the merged identity of the new programme internally and externally.

The author describes the all-age service as a potential solution for transition issues moving forward. It is noted that these programs are starting to be supported in available literature (Newell, 2023). Another benefit of the all-age ED service is that the typical parameters for evidence-based treatments can be expanded to a wider age range (e.g., FBT for individuals who are over the age 18, and CBT for those under), thus meeting the unique needs of patients. In addition, current UK protocols for transition are quite costly in terms of time and effort, such as requiring adolescents to receive a 6-month period of parallel care. With an all-age ED service, there would be no duplication of effort from two teams as there would be no transition. Lastly, the author concluded that they now have a cohort of highly skilled staff who can treat a wider range of patients (Newell, 2023). To conclude, this paper highlighted the visible benefits of their new programme locally and discussed the potential advantages for an all-age service for this clinical population, while also underscoring that research is still needed to evaluate the impact of these programs.

To start, there is an undeniable need for a solution for the poor transitions experienced by transition-age youth with EDs. Arguably, this group requires a seamless transition more than other clinical populations due to the denial-based nature of EDs (Gregertsen et al., 2017). The cut-off age of 18 years may have been indicative of adulthood when it was established. But, in the present-day, this arbitrary threshold feels vestigial given the different nature of experiences faced by youth today. We also agree that the approach that will yield the most successful ED care is to tailor services to meet patient needs, rather than requiring patients to adapt to the care that is available.

That said, the implementation of an all-age ED service brings with it some obstacles. In Newell's report (2023), it was stated that members of the ‘transitions’ team would receive clinical supervision from internal and external transition experts. However, these providers were not originally trained to treat both age groups, further evidenced by the discomfort of some clinicians in the study to shift from their area of expertise. In some professions working with EDs, their registered college only allows professionals to work with the age group they were trained for (e.g., physicians, psychologists). Even among those for whom certification is not age-based (e.g., social workers, psychotherapists, dieticians), these professionals are typically expected to specialise with either children and adolescents or adults, as the skillsets to engage with these groups and rules of treatment vary widely. Further, it was stated that the ‘transitions’ team would support clinicians in either service to support a transition-age youth, meaning that some patient-facing therapists—especially those on the paediatric end—would be working with both age ranges. Lastly, the final concern pertaining to treatment delivery is that of fidelity; if some clinicians are now expected to treat a wider age range of patients, thus taking on new, complex treatment modalities, there may be a risk of reduced adherence to each model by virtue of there being multiple treatments they are expected to provide. The quantity of treatments that a clinician provides should not sacrifice the quality with which they deliver each of those treatments.

Next, the author underscored how this developmental period of young adulthood is associated with many other life changes, which is especially challenging for youth with psychiatric or ED concerns (Newell, 2023); this is also reflected in other research (Dimitropoulos et al., 2013). Although this could mean a healthcare transition should be avoided to alleviate some of this change, transitions are ultimately a normal part of life and would likely strengthen self-management skills to navigate healthcare systems as an adult and learn first-hand how to take their treatment into their own hands. The Society of Paediatric Nurses referred to healthcare transition services as ensuring that “adolescents and emerging adults learn the self-management knowledge and skills necessary to manage their daily treatment needs as independently as possible and become a literate health consumer” (Betz, 2017, p. 161). Even if paediatric patients with EDs were receiving their treatment from an all-age service, they may be experiencing life changes that may require them to move their care anyways (e.g., moving to a new city for post-secondary education). Individuals with EDs usually also experience comorbidities, such as medical or psychiatric (Erdur et al., 2012; Salbach-Andrae et al., 2008); unless transition is eliminated for the care they may receive for these other health concerns, it may be more confusing for them to undergo a healthcare transition for some of their needs, but not others. Although hard, we believe transitions to be necessary for development, as this allows young adults to progress through the natural and inevitable stress of developing their own healthcare management skills.

The intention behind and implementation of the author's all-age ED service was founded in strong feedback from stakeholders that a change was needed to avoid traumatic transitions (Newell, 2023). However, even the author noted how much of a role various facilitators played into the feasibility and success of their service, such as only having a single commissioner to set up this programme or strong buy-in among providers from both original services. In other contexts, however, there may be additional obstacles in place that may limit implementation success such as administrative red tape in larger regions, healthcare systems that may have a different structure for approval of new programs, insufficient provider buy-in, and the lack of funds or resources. This reality threatens the generalisability of such a service when applied to other sites.

Lastly, the article discussed the need for more research to evaluate this newly proposed solution and compare it to current transition procedures. It is possible that an all-age service is the ideal solution to remove the problem of transition, but additional evidence is needed to support this shift. Qualitative research may shed light upon new challenges and benefits experienced when an all-age ED service is implemented, while quantitative research, such as pre-post designs or comparative trials, can establish a difference in tangible outcomes (e.g., reductions in ED symptomology by age 19, self-management skills).

This example of a successful implementation of all-age ED service by Newell (2023) presents a strong, novel solution for current difficulties regarding ED transitions. There are understandably some concerns with this new solution, such as the ones we have presented above, but this approach may still be appropriate for some contexts. Until more research is dedicated to exploring the effectiveness of and experiences with an all-age ED service, we propose some alternate ways we can improve our current transition supports in the interim.

The first strategy we suggest for improving transition using the age-separated structures that are currently in place is for paediatric and adult ED programs to dissolve the strict age cut-off of 18 years and, instead, use a flexible age approach. This has been recommended for youth with complex healthcare needs more generally (Toulany et al., 2022) as well as for adolescents with EDs (Nadarajah et al., 2021). Logistically-speaking, extending the care of adolescents receiving paediatric care by asking their therapist to continue working with them would require a change in infrastructure, such as additional space and staff. Conversely, it is possible that it would be more feasible in some contexts for the adult programme to accept youth who are younger than 18 into their programme. To support either or both of these suggested changes, the overseeing administrative and funding bodies need to support this shift by offering the resources, finances, and personnel necessary to carry this out successfully.

Another suggested way transitions may be improved would be to facilitate long-standing relationships between paediatric and adult programs located in the same regions; this should also be encouraged and funded by the responsible governing healthcare administration bodies. Borrowing from Newell's (2023) process, paediatric and adult teams could create their own internal ‘transitions’ teams that communicate closely with both programs for a more seamless transfer of care. Depending upon what these unions decide, paediatric teams may agree to standardise the initiation of transition-related conversations with patients and parents to start much earlier (e.g., a notification in the medical record system to engage in this conversation with a patient upon turning 16 or 17 years old). If a transition is something that the adolescent-parent pair would like to consider, they could be placed on the waitlist of the desired adult ED care programme to counteract the reality of long waitlists and reduce the risk of a break in care for adolescents.

Lastly, there are a variety of suggested strategies offered in the literature that could be added to paediatric and adult programs to assist with transitions, such as incorporating a transition navigator, peer support for transitioning adolescents, peer support for parents, involvement of the family physician, and having a transition meeting with both providers (Nadarajah et al., 2021; Nicula et al., 2023).

In conclusion, the all-age ED solution proposed by Newell (2023) addresses some of the issues with transition; however, it may not be feasible in all settings. We acknowledge that our suggestion to improve existing transitions does not fully address this issue, but it has been posed here as an alternate to the all-age ED service. In the same way that Newell (2023) notes their service's intention to attend to the needs of the patients rather than asking them to adapt to the care offered, we suggest that each programme's approach—specifically, whether they take on an all-age ED service or enhance transitions within two separate programs—carefully consider many factors, such as the capacity, context, type of healthcare system or funding structure, and the nature of the patients and families they service.

The authors declare no conflicts of interest.

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来源期刊
European Eating Disorders Review
European Eating Disorders Review PSYCHOLOGY, CLINICAL-
CiteScore
8.90
自引率
7.50%
发文量
81
期刊介绍: European Eating Disorders Review publishes authoritative and accessible articles, from all over the world, which review or report original research that has implications for the treatment and care of people with eating disorders, and articles which report innovations and experience in the clinical management of eating disorders. The journal focuses on implications for best practice in diagnosis and treatment. The journal also provides a forum for discussion of the causes and prevention of eating disorders, and related health policy. The aims of the journal are to offer a channel of communication between researchers, practitioners, administrators and policymakers who need to report and understand developments in the field of eating disorders.
期刊最新文献
The Cognitive Profile in Adolescents With Anorexia Nervosa and the Relationship With Autism and ADHD: A Pilot Study. Professional Digital Counselling for Eating Disorders in Germany: Results of the DigiBEssst Project Survey on the Perspectives and Experiences of Health Professionals, Individuals With Eating Disorders, and Carers. Carer Outcomes From a Residential Treatment Service for Eating Disorders. Editorial: Biological Therapies and Eating Disorders. Binge Eating Behaviour Before and 10 Years Following Metabolic and Bariatric Surgery.
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