对 Reddit 上瘢痕疙瘩患者问题的分析。

IF 3.8 3区 医学 Q2 CELL BIOLOGY Wound Repair and Regeneration Pub Date : 2024-03-01 Epub Date: 2024-02-19 DOI:10.1111/wrr.13160
Jennifer Wang, Paras Patel, Jared Jagdeo
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引用次数: 0

摘要

Reddit 是世界领先的社交媒体平台之一,促进了社区对包括瘢痕疙瘩在内的各种话题的积极讨论。Reddit 上对话的普遍性和覆盖面凸显了调查和了解患者观点和知识缺口的必要性。在此,我们对 Reddit 用户关于瘢痕疙瘩的问题和关注点进行了深入分析,为了解患者的经历、知识差距和治疗偏好提供了宝贵的见解。这项研究提出了一种独特的方法,即利用社交媒体数据的力量来了解患者的观点,而这些观点在临床环境中可能并不明显。研究分析了r/Keloids子论坛 "热门 "页面上的所有帖子。对问题进行了分类和细分,以揭示共同的主题。共识别并分析了2017年3月26日至2023年8月28日期间513个帖子中的644个问题。Reddit用户最常提出的问题是关于瘢痕疙瘩的治疗(57.5%)。其他常见类别包括诊断或症状的不确定性(15.1%)、与瘢痕疙瘩共存(7.5%)以及原因或诱发因素(6.2%)。这项分析强调了患者在瘢痕疙瘩方面存在知识差距和潜在误解的关键领域。对于皮肤科医生来说,了解患者的这些问题至关重要。有了这些了解,就可以开展以患者为中心的教育和治疗,确保提供更有效、更全面的护理。
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An analysis of keloid patient questions on Reddit.

Reddit is one of the world's leading social media platforms, fostering active community discussions on a variety of topics including keloids. The prevalence and reach of conversations on Reddit underscore the need to investigate and understand patient perspectives and gaps in knowledge. Herein, we present an in-depth analysis of questions and concerns of Reddit users on keloids, offering valuable insights into patient experiences, knowledge gaps and treatment preferences. The study presents a distinct approach by harnessing the power of social media data to understand patient perspectives, which may not be readily apparent in clinical settings. All posts on the 'Hot' page of the subreddit r/Keloids were analyzed. Questions were categorized and subcategorized to reveal common themes. A total of 644 questions from 513 posts between 26 March 2017 and 28 August 2023 were identified and analyzed. Reddit users most frequently asked questions regarding keloid management (57.5%). Other common categories included uncertainty regarding diagnosis or symptoms (15.1%), living with keloids (7.5%) and causes or triggers (6.2%). This analysis highlights critical areas of patient knowledge gaps and potential misconceptions regarding keloids. For dermatologists, understanding these patient questions is crucial. Such insights allow for patient-centric education and treatments, ensuring more effective and comprehensive care.

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来源期刊
Wound Repair and Regeneration
Wound Repair and Regeneration 医学-皮肤病学
CiteScore
5.90
自引率
3.40%
发文量
71
审稿时长
6-12 weeks
期刊介绍: Wound Repair and Regeneration provides extensive international coverage of cellular and molecular biology, connective tissue, and biological mediator studies in the field of tissue repair and regeneration and serves a diverse audience of surgeons, plastic surgeons, dermatologists, biochemists, cell biologists, and others. Wound Repair and Regeneration is the official journal of The Wound Healing Society, The European Tissue Repair Society, The Japanese Society for Wound Healing, and The Australian Wound Management Association.
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