对父母生活质量的不同影响:比较自闭症谱系障碍儿童和其他残疾儿童的父母在 COVID-19 大流行期间的情况

IF 1.8 4区 医学 Q2 PEDIATRICS Child Care Health and Development Pub Date : 2024-02-22 DOI:10.1111/cch.13227
Avital Laufer, Esther Isman
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引用次数: 0

摘要

研究背景 对照顾有特殊需要儿童的家长的生活质量(QoL)进行的研究十分有限,大多数研究都是将自闭症谱系障碍(ASD)儿童的家长与典型发育儿童的家长进行比较。本研究调查了 COVID-19 大流行期间两个可比群体的生活质量和相关变量:自闭症谱系障碍儿童的父母和其他诊断(非自闭症谱系障碍)儿童的父母。 方法 样本包括 175 名以色列家长(自闭症儿童家长 101 人;非自闭症儿童家长 74 人)。调查内容包括大流行病对家庭生活的影响、对儿童功能的影响、对家长自身心理困扰的影响、抗压能力和 QoL。 结果 两组家长都表示,他们孩子的学业、情绪、社交和功能表现都有所下降。然而,ASD 组的心理困扰程度更高,儿童行为的恶化程度也更严重。在这两组中,生活质量与远程学习的引入和家长的适应能力呈正相关,而与心理困扰、儿童行为和功能退化以及在家中陪伴儿童的时间增加呈负相关。交互分析表明,儿童行为的恶化仅与 ASD 组的 QoL 相关,而家庭氛围则与非 ASD 组的 QoL 相关。 结论 虽然 COVID-19 大流行给两组家长带来了相似的挑战,但有证据表明,它对 ASD 组的挑战可能更大。这就需要进一步研究有特殊需要儿童的父母,并相应地为他们提供有针对性的具体帮助。
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Differential impact on parental quality of life: Comparing parents to children with autism spectrum disorder and those with other disabilities during the COVID-19 pandemic

Background

Limited research has examined parental quality of life (QoL) for caregivers of children with special needs, mostly comparing parents of children with autism spectrum disorder (ASD) to those with typical development. This study examines QoL and related variables during the COVID-19 pandemic among two comparable groups: parents of children with ASD and parents of children with other diagnoses (non-ASD).

Method

The sample included 175 Israeli parents (ASD = 101; non-ASD = 74). The parents were surveyed about the pandemic's effects on family life, child's function, and their own psychological distress, resilience, and QoL.

Results

Parents in both groups reported deterioration in their child's academic, emotional, social, and functioning performance. However, higher psychological distress and more deterioration in child behaviour were reported in the ASD group. In both groups, QoL was positively associated with the introduction of distance learning and parental resilience and negatively associated with psychological distress, deterioration in the child's behaviour and functioning, and increased time spent with the child at home. An interaction analysis indicated that deterioration in a child's behaviour was linked to QoL solely within the ASD group, while home atmosphere was associated with QoL in the non-ASD group.

Conclusion

While the COVID-19 pandemic imposed similar challenges on both parental groups, there is evidence that it may have been more challenging for the ASD group. This calls for further examination concerning parents with special needs children, and accordingly, tailoring targeted and specific help for them.

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来源期刊
CiteScore
3.40
自引率
5.30%
发文量
136
审稿时长
4-8 weeks
期刊介绍: Child: care, health and development is an international, peer-reviewed journal which publishes papers dealing with all aspects of the health and development of children and young people. We aim to attract quantitative and qualitative research papers relevant to people from all disciplines working in child health. We welcome studies which examine the effects of social and environmental factors on health and development as well as those dealing with clinical issues, the organization of services and health policy. We particularly encourage the submission of studies related to those who are disadvantaged by physical, developmental, emotional and social problems. The journal also aims to collate important research findings and to provide a forum for discussion of global child health issues.
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