探索癌症和非癌症严重慢性病患者的姑息关怀需求:一项比较研究。

Malek Alnajar, Muhammad Darawad, Wejdan Khater, Rashed Alshahwan, Sultan Mosleh, Basema Nofal, Maysoon Abdalrahim
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引用次数: 0

摘要

背景:姑息关怀(PC)是提高重病患者生活质量和减轻痛苦不可或缺的一部分。这项跨学科研究旨在全面评估癌症和非癌症慢性病患者的痛苦问题和未满足的需求,并探讨他们对姑息关怀的需求:研究采用横断面、比较和多中心设计,涉及8家医院的458名患者,使用自我报告的姑息治疗问题和需求-sv问卷:研究对象包括 276 名癌症患者(60.3%)和 182 名非癌症慢性病患者(39.7%)。大多数患者年龄在 45-64 岁之间(216 人,占 47.2%)。癌症患者报告的身体症状发生率较高,尤其是疼痛(240 人,87%)和厌食(192 人,69.6%),而非癌症患者则面临更多的社会挑战,包括伴侣关系问题(77 人,42.3%)和与生活伴侣讨论自己的疾病(78 人,42.9%)。未满足的需求在两组患者中都很普遍,癌症患者平均有 75.6% (n = 120)的需求未得到满足,主要集中在信息领域(n = 145,91.75%)和精神领域(n = 123,77.8%)。非癌症患者则强调经济(71 人,66.6%)和自主(59 人,55.0%)方面的问题。此外,两组中夏尔森综合症指数(Charlson Comorbidity Index)得分较高的患者在所有健康领域的个人护理需求都明显较高:这项研究强调了癌症和非癌症慢性病患者对全面个人护理的普遍需求。研究结果强调了加强个人护理的必要性,尤其是对患有多种并发症的患者。需要进一步开展研究,以全面解决这两类患者的心理、社会和精神问题。
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Exploring Palliative Care Needs Among Patients With Cancer and Non-Cancer Serious Chronic Diseases: A Comparison Study.

Background: Palliative care (PC) is integral to improving the quality of life and mitigating suffering for individuals with serious illnesses. This interdisciplinary-led study aims to comprehensively evaluate the prevalence of distressing problems and unmet needs among both cancer and non-cancer chronic disease patients and explore their need for PC.

Methods: A cross-sectional, comparative, and multicenter design was conducted, involving 458 patients from eight hospitals, utilizing a self-reported Problems and Needs in Palliative Care-sv questionnaire.

Results: The study included 276 (60.3%) patients with cancer and 182 (39.7%) with non-cancer chronic diseases. Most were 45-64 years old (n = 216, 47.2%). Patients with cancer reported a higher prevalence of physical symptoms, notably pain (n = 240, 87%) and anorexia (n = 192, 69.6%), while non-cancer patients faced more social challenges, including issues in companion relationships (n = 77, 42.3%) and discussing their disease with life companion (n = 78, 42.9%). Unmet needs were prevalent in both groups, with cancer patients having an average of 75.6% (n = 120) unmet needs, predominantly in the information (n = 145, 91.75%) and spiritual domains (n = 123, 77.8%). Non-cancer patients emphasized financial (n = 71, 66.6%) and autonomy (n = 59, 55.0%) problems. Moreover, patients in both groups with severe Charlson Comorbidity Index scores demonstrated significantly higher PC needs across all health domains.

Conclusion: The study highlights the universal demand for comprehensive PC for patients with both cancer and non-cancer chronic diseases. The findings underscore the need for enhanced PC provision, especially for patients with multiple comorbidities. Further research is needed to comprehensively address psychological, social, and spiritual problems in both patient groups.

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