[从父母的角度看癌症儿童的医院家庭护理--家庭成员的定性研究]。

IF 1.2 4区 医学 Q3 PEDIATRICS Klinische Padiatrie Pub Date : 2024-05-01 Epub Date: 2024-03-04 DOI:10.1055/a-2246-2645
Ute Karbach, Sarah Krawiec, Stephan Remmert, Rebecca Toenne, Dirk Reinhardt, Dominik T Schneider, Thorsten Simon, Katharina Waack-Buchholz, Rebecca Kristiment
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引用次数: 0

摘要

背景:德国每年约有 2200 名儿童和青少年被诊断患有肿瘤疾病。到目前为止,几乎还没有针对这些患者的家庭护理服务。德国有一项试点计划,为患有癌症的儿童和青少年提供以医院为基础的家庭护理服务。我们将通过一项定性探索研究来了解患者家长的观点:在这项访谈研究中,将对癌症儿童的父母进行访谈:方法:进行定性探索性访谈研究,从家长的主观角度了解癌症患儿在医院接受家庭护理的情况。样本是在标准指导下抽取的。对访谈内容进行逐字记录,并使用定性内容分析法进行分析。关于社会人口特征,参与者回答了一份在线问卷:参加访谈的有 11 名女性和 3 名男性,年龄在 30 岁至 60 岁之间。患病儿童的平均年龄为 8.43 岁。五位家长表示,孩子生病并未导致他们减少工作时间或终止雇佣关系。医院的家庭护理使家庭日常生活得到了主观感受上的缓解,尤其是在时间方面。讨论/结论:讨论/结论:由于研究设计的原因,本文介绍的结果只能作为参考。在今后的研究中,应通过具有代表性的定量研究来补充所提供的结果。
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[Hospital-based Home Care for Children with Cancer from the Parents̓ Point of View - A Qualitative Exploration of Family Members].

Background: About 2,200 children and adolescents in Germany per year are diagnosed with oncological diseases. Through now, there are almost no offers for home care services for these patients. There is a pilot program offering hospital-based home care for children and adolescents with cancer in Germany. The perspective of the parents will be researched by a qualitative exploring study.

Patients: In this interview study parents from children with cancer will be interviewed.

Method: A qualitative exploring interview study, seeking the subjective perspective from parents on the hospital-based home care for children with cancer. The sample was drawn criterion-guided. The interviews were transcribed verbatim and analysed using qualitative content analysis. For socio- demographic characteristics the participants respond to an online questionnaire.

Results: Eleven women and three men aged between 30 and 60 years participated in the interviews. The average age of the ill children was 8.43 years. Five parents state that the children's illness did not lead to a reduction in working hours or to the termination of the employment relationship. Hospital-based home care results in subjectively perceived relief in everyday family life, especially in terms of time. Furthermore, a reduction in the psychological perception of stress is described.

Discussion/conclusion: Due to the study design, the results presented here are to be regarded as indicative. In future studies the presented results should be supplemented by quantitative representative studies.

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来源期刊
Klinische Padiatrie
Klinische Padiatrie 医学-小儿科
CiteScore
1.10
自引率
0.00%
发文量
135
审稿时长
6-12 weeks
期刊介绍: Das Forum für wissenschaftliche Information in der Kinderheilkunde ausgewählte Originalarbeiten aus allen Bereichen der Pädiatrie Visite: Ihr Forum für interessante Krankengeschichten und außergewöhnliche Kasuistiken aktuelle Fortschritte in Diagnostik und Therapie jährliche Schwerpunkthefte: Ergebnisse der pädiatrischen Onkologie plus Medizin und Markt topaktuelle Informationen aus der Industrie
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