社区关怀:探索孟买巴斯提斯为残疾人提供的自然和正式支持

IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Journal of Developmental and Physical Disabilities Pub Date : 2024-03-08 DOI:10.1007/s10882-024-09947-7
Srishti Jaitely, Navjit Gaurav
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引用次数: 0

摘要

孟买有 2200 多万人口,其中估计有 41.3%的人生活在私宅中,获得基本设施和支持的机会有限。2011 年,孟买的残疾人数量为 48 万,预计到 2025 年将增至 400 万。为了让残疾人过上更高质量的生活,他们需要社区对其日常生活的支持和正规的康复支持。本研究采用定性探索方法,探讨了综合支持(自然支持+正式支持)对残疾人的益处。研究人员特意从五个韧皮部招募了 15 名不同残疾类型的残疾人和 13 名支持服务提供者,并通过面对面访谈和社会心理帮助热线收集数据。研究有三个主题:i) 了解巴斯提斯的正式和自然支持;ii) 社区的作用;iii) 正式和自然支持的交叉。研究结果表明,虽然正规和自然支持都有其独立的益处,但这些支持共同使残疾人的生活更轻松、更有意义。
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Community care: Exploring Natural and Formal Support for People with Disabilities in the Bastis of Mumbai

Mumbai is home to over 22 million people, of which 41.3% are estimated to live in bastis with limited access to basic facilities and support. The number of people with disabilities living in Mumbai was 0.48 million in 2011, expected to rise to 4 million by 2025. For people with disabilities to live a better quality of life, they require a combination of support from the community for their day-to-day living and formal support for their rehabilitation. This study used a qualitative exploratory approach and explored the benefit of integrated support (natural + formal) for people with disabilities. Fifteen people with diverse disabilities and thirteen support providers were purposely recruited from five bastis, and data was collected through face-to face interviews and through a psycho-social helpline. Three themes, i) understanding formal and natural supports in Bastis, ii) the role of the community, and iii) the Intersection of formal and natural support. Findings indicate that while formal and natural supports have their independent benefits, yet together these supports make life easier and more meaningful for people with disabilities.

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来源期刊
CiteScore
3.40
自引率
5.60%
发文量
54
期刊介绍: The Journal of Developmental and Physical Disabilities is an interdisciplinary forum for the publication of original research and clinical reports from a variety of fields serving persons with developmental and physical disabilities. Submissions from researchers, clinicians, and related professionals in the fields of psychology, rehabilitation, special education, kinesiology, counseling, social work, psychiatry, nursing, and rehabilitation medicine are considered. Investigations utilizing group comparisons as well as single-case experimental designs are of primary interest. In addition, case studies that are of particular clinical relevance or that describe innovative evaluation and intervention techniques are welcome. All research and clinical reports should contain sufficient procedural detail so that readers can clearly understand what was done, how it was done, and why the strategy was selected. Rigorously conducted replication studies utilizing group and single-case designs are welcome irrespective of results obtained. In addition, systematic reviews, meta-analyses, and theoretical discussions that contribute substantially to understanding the problems and strengths of persons with developmental and physical disabilities are considered for publication. Authors are encouraged to preregister empirical studies, replications, systematic reviews, and meta-analyses in a relevant public database and to include such information with their submission to the journal. Authors are also encouraged, where possible and applicable, to deposit data that support the findings of their research in a public repository (see detailed “Research Data Policy” module in the journal’s Instructions for Authors). In response to the need for increased clinical and research endeavors with persons with developmental and physical disabilities, the journal is cross-categorical and unbiased methodologically.
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