为脊髓损伤研究和康复中的自主权制定以人为本的伦理框架。

IF 2.2 4区 医学 Q1 REHABILITATION PM&R Pub Date : 2024-10-01 Epub Date: 2024-03-23 DOI:10.1002/pmrj.13146
Anna Nuechterlein, Alexandra Olmos Pérez, Fabio Rossi, Jody Swift, Andrea Townson, Judy Illes
{"title":"为脊髓损伤研究和康复中的自主权制定以人为本的伦理框架。","authors":"Anna Nuechterlein, Alexandra Olmos Pérez, Fabio Rossi, Jody Swift, Andrea Townson, Judy Illes","doi":"10.1002/pmrj.13146","DOIUrl":null,"url":null,"abstract":"<p><p>In this paper, we explore how the concepts of autonomy and autonomous choice are understood in the context of spinal cord injury in the academic literature, both in reporting on research results and more broadly on outcomes and quality of life. We find inconsistent, framework-absent portrayals of autonomy as well as an absence of discourse that draws upon ethical constructs and theory. In response, we advance a person-centered framework for spinal cord injury research that combines both lived experience and a disability ethics approach to fill this gap.</p>","PeriodicalId":20354,"journal":{"name":"PM&R","volume":" ","pages":"1154-1161"},"PeriodicalIF":2.2000,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Toward a person-centered ethics framework for autonomy in spinal cord injury research and rehabilitation.\",\"authors\":\"Anna Nuechterlein, Alexandra Olmos Pérez, Fabio Rossi, Jody Swift, Andrea Townson, Judy Illes\",\"doi\":\"10.1002/pmrj.13146\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>In this paper, we explore how the concepts of autonomy and autonomous choice are understood in the context of spinal cord injury in the academic literature, both in reporting on research results and more broadly on outcomes and quality of life. We find inconsistent, framework-absent portrayals of autonomy as well as an absence of discourse that draws upon ethical constructs and theory. In response, we advance a person-centered framework for spinal cord injury research that combines both lived experience and a disability ethics approach to fill this gap.</p>\",\"PeriodicalId\":20354,\"journal\":{\"name\":\"PM&R\",\"volume\":\" \",\"pages\":\"1154-1161\"},\"PeriodicalIF\":2.2000,\"publicationDate\":\"2024-10-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"PM&R\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1002/pmrj.13146\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2024/3/23 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q1\",\"JCRName\":\"REHABILITATION\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"PM&R","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1002/pmrj.13146","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2024/3/23 0:00:00","PubModel":"Epub","JCR":"Q1","JCRName":"REHABILITATION","Score":null,"Total":0}
引用次数: 0

摘要

在本文中,我们探讨了学术文献是如何在脊髓损伤的背景下理解自主性和自主选择的概念的,既包括对研究成果的报道,也包括对结果和生活质量的更广泛报道。我们发现,对自主性的描述前后不一,缺乏框架,也缺乏借鉴伦理建构和理论的论述。为此,我们提出了一个以人为本的脊髓损伤研究框架,该框架结合了生活经验和残疾伦理方法,以填补这一空白。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
查看原文
分享 分享
微信好友 朋友圈 QQ好友 复制链接
本刊更多论文
Toward a person-centered ethics framework for autonomy in spinal cord injury research and rehabilitation.

In this paper, we explore how the concepts of autonomy and autonomous choice are understood in the context of spinal cord injury in the academic literature, both in reporting on research results and more broadly on outcomes and quality of life. We find inconsistent, framework-absent portrayals of autonomy as well as an absence of discourse that draws upon ethical constructs and theory. In response, we advance a person-centered framework for spinal cord injury research that combines both lived experience and a disability ethics approach to fill this gap.

求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
PM&R
PM&R REHABILITATION-SPORT SCIENCES
CiteScore
4.30
自引率
4.80%
发文量
187
审稿时长
4-8 weeks
期刊介绍: Topics covered include acute and chronic musculoskeletal disorders and pain, neurologic conditions involving the central and peripheral nervous systems, rehabilitation of impairments associated with disabilities in adults and children, and neurophysiology and electrodiagnosis. PM&R emphasizes principles of injury, function, and rehabilitation, and is designed to be relevant to practitioners and researchers in a variety of medical and surgical specialties and rehabilitation disciplines including allied health.
期刊最新文献
Percutaneous ultrasound-guided A1 pulley release utilizing a modified 20-gauge spinal needle. Self-perceived preparedness for practice among graduating physical medicine & rehabilitation residents. Knee joint mechanics during gait after anterior cruciate ligament reconstruction using a partial or full thickness quadriceps tendon autograft at 2 years after surgery. Test Smart, Treat Smart-using clinician feedback to adapt a catheter-associated urinary tract infection intervention for spinal cord injury. Racial disparities in prosthesis use, satisfaction, and physical function in upper limb amputation and the impact of veteran status.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
已复制链接
已复制链接
快去分享给好友吧!
我知道了
×
扫码分享
扫码分享
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1