(122) 残疾与前列腺癌相关性功能障碍的男性体验

W. Kinnaird, M. Kirby, P. Schartau, V. Jenkins, S. Allen, H. Payne
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The focus of the current sub-analysis was on participants who self-reported any kind of disability. Chi-square testing was used for categorical variable analysis.\n \n \n \n 654 out of 893 adult participants (73.2%) reported having a diagnosis of prostate cancer. Of those 95 (14.5%) self-reported having a disability, 553 (84.6%) reported not having a disability, and 6 (0.9%) said they would ‘prefer not to say’. Physical and psychological sexual problems were common among men with self-reported disabilities, with more than 50% reporting sexual dysfunction in 9 out of 13 domains. They were more likely to report sexual dysfunction than men with no disability in 11 out of those 13 domains, reaching the level of significance in five of those (p<.05). [Fig 1] Sexual activity was rated as ‘fairly/very important’ by 77.9% (n=74) of men with a disability. 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引用次数: 0

摘要

性活动对身心健康的益处是有据可查的。然而,残障人士的性需求往往得不到认可,当问题出现时,他们也不太可能获得专业支持。几乎所有的前列腺癌(PCa)治疗都与性副作用有关,而这些副作用会对性健康产生负面影响。 为了探究残疾对 PCa 患者性功能障碍和获得支持的影响。 我们与英国前列腺癌慈善机构合作,向患有 PCa 的男性患者发放了一份匿名在线调查问卷。问题主要集中在参与者的性功能障碍经历以及他们获得支持的程度。本次子分析的重点是自述有任何残疾的参与者。对分类变量的分析采用了卡方检验。 在 893 名成年参与者中,有 654 人(73.2%)报告确诊患有前列腺癌。其中 95 人(14.5%)自称有残疾,553 人(84.6%)自称没有残疾,6 人(0.9%)表示 "不愿透露"。在自述有残疾的男性中,生理和心理方面的性问题很常见,50%以上的人在 13 个领域中的 9 个领域报告有性功能障碍。与无残疾男性相比,他们更有可能在 13 个领域中的 11 个领域报告性功能障碍,其中 5 个领域达到显著性水平(P<.05)。[图 1]77.9%(样本数=74)的残疾男性认为性活动 "相当/非常重要"。此外,60.0%(n=57)的残疾男性表示 "性问题 "是他们目前最关心的三个问题之一,也是 15 个类别中排名最高的问题。这两项结果与没有自我报告残疾的男性相比没有明显差异(p=.90 和 p=.68)。尽管如此,有残疾的男性与医护人员(HCP)讨论 PCa 治疗的性副作用的可能性明显较低(44.2% vs 65.3%,p<.05)。在讨论过性副作用的男性中,两组中都只有少数人被转诊至专科门诊,组间差异不大(27.6% vs 29.9%,p=.71)。在评估性副作用支持满意度的五项陈述中,残疾男性对每项陈述的满意度都较低,其中四项达到了显著水平(P<0.05)[图 2]。 本研究首次报告了与 PCa 相关的残疾和男性性功能障碍体验。我们的研究结果表明,在残疾男性中,广泛的生理和心理性副作用是常见的,也是令人痛苦的。性活动对残疾男性同样重要,但他们不太可能通过保健医生获得支持。这导致了他们对医疗服务的高度不满。研究结果表明,残疾男性在获得性支持方面面临更多障碍,并强调了让所有男性公平获得支持性护理的重要性。 是,这是由行业/赞助商赞助的:澄清:仅由行业资助 - 由研究者发起并执行研究。
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(122) Disability and Men’s Experience of Sexual Dysfunction Associated with Prostate Cancer
The physical and psychological health benefits of sexual activity are well documented. However, sexual needs in people with disabilities are often unrecognised and they are less likely to access professional support when problems arise. Almost all prostate cancer (PCa) treatments are associated with sexual side effects that can have negative effects on sexual well-being. To explore the impact disability has on PCa patients' experiences of sexual dysfunction and accessing support. An anonymous online survey was distributed to men with PCa in collaboration with the charity Prostate Cancer UK. Questions focused on participants’ experience of sexual dysfunction and the level of support they received. The focus of the current sub-analysis was on participants who self-reported any kind of disability. Chi-square testing was used for categorical variable analysis. 654 out of 893 adult participants (73.2%) reported having a diagnosis of prostate cancer. Of those 95 (14.5%) self-reported having a disability, 553 (84.6%) reported not having a disability, and 6 (0.9%) said they would ‘prefer not to say’. Physical and psychological sexual problems were common among men with self-reported disabilities, with more than 50% reporting sexual dysfunction in 9 out of 13 domains. They were more likely to report sexual dysfunction than men with no disability in 11 out of those 13 domains, reaching the level of significance in five of those (p<.05). [Fig 1] Sexual activity was rated as ‘fairly/very important’ by 77.9% (n=74) of men with a disability. Further, 60.0% (n=57) reported ‘sexual problems’ to be in their top three current concerns, the highest ranked concern from a list of 15 categories. There was no significant difference in these two results when compared with those for men who did not self-report a disability (p=.90 & p=.68). Despite this, men with a disability were significantly less likely to have discussed the sexual side effects of PCa treatment with a healthcare professional (HCP) (44.2% vs 65.3%, p<.05). Of the men who did discuss sexual side effects, only a minority in both groups were offered a referral on to a specialist clinic, with no significant difference between the groups (27.6% vs 29.9%, p=.71). Men with a disability reported lower levels of satisfaction in each of five statements assessing satisfaction with support for sexual side effects, reaching the level of significance in four (p<0.05) [Fig 2]. This study is the first to report on disability and men’s experience of sexual dysfunction associated with PCa. Our findings suggest wide-ranging physical and psychological sexual side effects are common and distressing among men with disabilities. Sexual activity is equally as important to men with disabilities but they are less likely to access support through HCPs. This results in high levels of dissatisfaction with care. The results suggest men with disabilities face additional barriers to accessing sexual support and highlight the importance of giving all men equitable access to supportive care. Yes, this is sponsored by industry/sponsor: Astellas Pharma Clarification: Industry funding only - investigator initiated and executed study.
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