在渴望预知死亡的背景下提供临终关怀援助

IF 1.8 4区 医学 Q2 MEDICINE, GENERAL & INTERNAL Atencion Primaria Pub Date : 2024-03-27 DOI:10.1016/j.aprim.2024.102895
Xavier Busquet-Duran , Emilio José Martínez Losada , Pere Torán-Monserrat
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引用次数: 0

摘要

安乐死管理组织法》将于 2021 年 6 月生效,这要求临床医生重新考虑他们的专业工作,因为这项新服务扩大了在此之前被认为是正确的服务的范围。这项新服务影响到整个医疗系统,尤其是初级保健专业人员。除了程序和道德方面,有必要重新思考对表达死亡意愿的病人的评估。在这篇综述中,我们将从希望加速死亡(WTHD)相对较新的定义、其原因、流行病学和鉴别诊断入手。然后,我们研究了死亡过程中的不同心理框架以及 "美好死亡 "的概念。最后,我们分析了在现行法律框架内提供临终关怀的途径。世界人道关怀日专门针对 "重病和晚期疾病 "的请求,而不是法律规定的其他情况。在 WTHD 的背景下(即濒临死亡),面对启动临终关怀服务的请求时,有必要增强病人的控制感,并开始进行哀悼工作。此外,面对必然漫长的行政程序,调整治疗方法和镇静也应被视为可能的选择。我们知道,既不能让患者/家属产生错误的期望,也不能让医护人员承担过多的行政工作,以免徒劳无功。面对患者应始终享有的权利要求,很难在这两者之间取得平衡。
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La prestación de ayuda a morir en el contexto del deseo de anticipar la muerte

The entry into force of the Organic Law on the Regulation of Euthanasia in June 2021 obliges clinicians to reconsider their professional work, in the face of a new service that expands the limits of what was considered correct until then. This new service affects the entire healthcare system, but especially primary care professionals. Beyond the procedural and moral aspects, it is necessary to rethink the assessment of the patient who expresses a wish to die. In this review, we start with the relatively recent definition of the wish to hasten death (WTHD), its causes, epidemiology and differential diagnosis. Then, we examine the different mental frameworks found in the process of dying and the concept of a «good death». Finally, we analyse the paths that can lead to the provision of aid in dying within the framework of current legislation. The WTHD is specific to requests in case of «serious and advanced illness», not in other cases contemplated by the Law. When faced with a request to activate the Aid in Dying Prestation in the context of WTHD (that is, in the proximity of death), it becomes necessary to increase the patient's sense of control and begin to work on grief. Besides, in the face of an administrative process that will necessarily be long, adapting the therapeutic efforts and sedation should be considered as possible options. We understand that it is essential not to create false expectations for patients/families and not to overload healthcare professionals with administrative tasks that will be futile. It is difficult to balance these in the face of a request for a right to which the patient should always have access.

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来源期刊
Atencion Primaria
Atencion Primaria 医学-医学:内科
CiteScore
2.90
自引率
8.00%
发文量
156
审稿时长
33 days
期刊介绍: Atención Primaria es una revista que publica trabajos de investigación relativos al ámbito de la atención primaria de salud. Desde el punto de vista conceptual, Atención Primaria asume el nuevo modelo de atención primaria de salud, orientado no sólo a la curación de la enfermedad, sino también a su prevención y a la promoción de la salud, tanto en el plano individual como en el de la familia y la comunidad. En estos nuevos aspectos que definen el modelo de atención primaria de salud es en los que se centran los trabajos de investigación que publica Atención Primaria, la primera revista de originales española creada para recoger y difundir la producción científica realizada desde los centros de atención primaria de salud sobre cuestiones como protocolización de la asistencia, programas de prevención, seguimiento y control de pacientes crónicos, organización y gestión de la asistencia primaria, entre otros.
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