改编多发性硬化症功能综合征,以便利用视频会议进行远程保健管理:方法学考虑因素和评分者之间的可靠性

Toni Van Denend OTD, OTR/L , Virgil Mathiowetz PhD, OT, FAOTA , Katharine Preissner EdD, OTR/L, FAOTA , Francois Bethoux MD , Marcia Finlayson PhD, OTR, OT Reg (Ont) , Tanya Packer PhD OTReg (NS) , Setareh Ghahari PhD, OT Reg (Ont) , Matthew Plow PhD
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引用次数: 0

摘要

设计多发性硬化症功能综合征(MSFC)是一种常用的现场临床结果评估方法,由定时 25 英尺步行测试(T25FWT)、九孔钉牢测试(NHPT)和步调听觉连续加法测试(PASAT)组成。它由定时 25 英尺步行测试 (T25FWT)、九孔钉牢测试 (NHPT) 和步调听觉连续加法测试 (PASAT) 组成。MSFC 被改编为视频会议施测,作为大型临床试验的一部分。其中一项调整包括为家中没有足够空间进行 T25FWT 的参与者进行 12.5 英尺定时步行测试(T12.5FWT)。参与者、检查者和评分者在线完成了关于远程 MSFC 满意度和体验的调查。设置参与者在家中使用笔记本电脑或智能手机进行远程 MSFC,检查者在远程地点对远程 MSFC 进行实时评分。干预措施不适用。主要结果测量远程-MSFC。结果类间相关系数(ICC)评估了检查者与随后对远程-MSFC录音进行评分的两名独立评分者之间的互测可靠性。包括 T12.5FWT 在内的所有测试的互测可靠性都非常好(ICC>0.90)。参与者对远程 MSFC 非常满意。然而,面临的挑战包括 T25FWT 有足够的空间、技术上的困难,以及中度障碍者的安全和隐私考虑,他们要求在测试时有护理人员在场。T12.5FWT 还需要进一步验证。
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Adapting the Multiple Sclerosis Functional Composite for Telehealth Administration Using Videoconference Delivery: Methodological Considerations and Interrater Reliability

Objective

To describe the adaptations made and to examine interrater reliability and feasibility of administering a telehealth version of the Multiple Sclerosis Functional Composite (tele-MSFC).

Design

The Multiple Sclerosis Functional Composite (MSFC) is a commonly used, in-person clinical outcome assessment. It is composed of the timed 25-Foot Walk Test (T25FWT), Nine-Hole Peg Test (NHPT), and Paced Auditory Serial Addition Test (PASAT). The MSFC was adapted for videoconference administration as part of a larger clinical trial. One of the adaptations included administering a timed 12.5-Foot Walk Test (T12.5FWT) for participants who did not have adequate space in their homes for the T25FWT. Participants, examiners, and raters completed surveys online about their satisfaction and experience with tele-MSFC.

Setting

Participants underwent the tele-MSFC in their homes using a laptop or smartphone while examiners scored the tele-MSFC in real-time at a remote location.

Participants

Community-dwelling adults (n=61) with mild-to-moderate multiple sclerosis (MS) symptoms.

Interventions

Not applicable.

Main Outcome Measure

Tele-MSFC.

Results

Intraclass correlation coefficients (ICC) assessed interrater reliability between the examiner and 2 independent raters who later scored a recording of the tele-MSFC. Interrater reliability was excellent (ICC>0.90) for all tests, including the T12.5FWT. Participants were highly satisfied with tele-MSFC. However, challenges included adequate space for T25FWT, technical difficulties, and safety and privacy considerations of individuals with moderate impairments who were requested to have their caregivers present during testing.

Conclusion

The tele-MSFC is reliable and feasible to administer with adaptations for community-dwelling adults with mild to moderate MS symptoms. Further validation of T12.5FWT is needed.

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