1 型糖尿病儿童患者的生活质量。年轻患者及其父母报告的比较研究

Adamantini Plarinou, Kyriaki Karavanaki, Ioannis Koutelekos, Alexandros Mihopoulos, Pantelis Perdikaris
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摘要

背景:为了有效控制 1 型糖尿病,患者需要改变生活方式、饮食和运动。然而,糖尿病患者的生活质量似乎经常受到影响。研究方法研究记录了 5-18 岁 1 型糖尿病儿科患者及其父母的报告,以评估患者的生活质量。使用的问卷是 PedsQL Diabetes Module 3.0 版,该问卷用于评估:1 型糖尿病的症状、与治疗相关的问题、对疾病的担忧以及沟通。研究结果研究样本包括 102 名 1 型糖尿病患者。收集到的数据显示,患病会影响生活质量。高水平的 HbA1c 和低血糖或糖尿病酮症酸中毒的发作会使 1 型糖尿病患者的生活变得更加复杂。此外,生活质量还取决于各种人口因素,如父亲的教育水平、家中是否有兄弟姐妹、居住地和患者的年龄。结论:尽管这项研究存在一些局限性,但可以明显看出,1 型糖尿病患者的日常生活非常复杂。因此,重要的是要制定策略,帮助患者及其家人更好地管理疾病,确保他们获得所需的心理支持,以达到最佳的疾病管理效果。
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Quality of life in pediatric patients suffering from Type 1 Diabetes Mellitus. Comparative study of the reports of young patients and their parents
Background: For the effective management of type 1 diabetes, patients are called upon to adopt changes in lifestyle, diet, and exercise. However, it appears that living with diabetes often disrupts their quality of life. Methods: The study involved recording reports from pediatric patients with type 1 diabetes aged 5-18 years, as well as their parents, to assess the quality of life of the affected individuals. The questionnaire used was the PedsQL Diabetes Module Version 3.0, which evaluates: the symptoms of type 1 diabetes, treatment-related issues, concerns about the disease, and communication. Results: The study sample consisted of 102 patients with type 1 diabetes. The collected data revealed that living with the disease affects the quality of life. Some indicative examples of this would be how high levels of HbA1c and episodes of hypoglycemia or diabetic ketoacidosis, can complicate the lives of patients who suffer from type 1 diabetes. Additionally, the quality of life depends on various demographic factors, such as father's educational level, presence of siblings in the family, place of residence, and age of the patients. Conclusions: Although this study has some limitations, it is evident that living with type 1 diabetes complicates daily life. Therefore, it is important to design strategies to help patients and their families better manage the disease, ensuring they receive the required psychological support for optimal disease management.
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