共同努力,改善健康:共同努力支持加拿大罕见病药物国家战略

Helen Mai, Trish Caetano, Carli Wallington
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引用次数: 0

摘要

2 月 29 日是 "罕见病日"(Rare Disease Day)--这是一个激励人们采取行动、团结一致应对罕见病挑战和机遇的日子。为解决罕见病患者面临的问题,加拿大政府于 2023 年 3 月宣布了一项罕见病药物国家战略,在 3 年内投资高达 15 亿加元。该战略旨在提高加拿大全国罕见病患者对罕见病药物的可及性和可负担性。加拿大卫生部牵头的倡议主要涉及改进证据的收集、使用和质量,为决策提供信息和支持。
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Working Together for Better Health: A United Effort to Support the National Strategy for Drugs for Rare Diseases in Canada
February 29 is Rare Disease Day — an occasion that inspires action and solidarity to address the challenges and opportunities of rare diseases. To address the issues faced by patients with rare diseases, in March 2023, the Government of Canada announced a national strategy for drugs for rare diseases, with an investment of up to $1.5 billion over 3 years. The strategy aims to increase the accessibility and affordability of drugs for rare diseases for patients across Canada. CADTH-led initiatives are primarily related to improving the collection, use, and quality of evidence to inform and support decision-making.
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