以护理人员为中心的护理包对脑瘫儿童功能性平衡和日常生活活动的影响:随机对照试验

Reham Hashad, Asmaa Abdallah, Ahmed Ahmed, Doaa Wady, Doaa Said
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摘要

背景:脑瘫患儿由于存在多种功能障碍,需要接受跨学科治疗。因此,护理人员普遍存在高度压力、担忧和对未知事物的恐惧。因此,了解脑瘫对于照顾者的适应和角色准备至关重要。但是,关于如何最有效地教导照顾者的科学数据却十分匮乏。本试验旨在评估以照顾者为中心的套餐对脑瘫儿童功能平衡和日常生活活动的影响。设计:在曼苏尔大学儿童医院附属门诊部实施随机对照试验。采用随机技术招募了 80 名护理人员及其子女。数据收集工具有四种:护理人员CP知识结构化访谈问卷表、护理人员护理报告表、儿童脑瘫生活质量量表和小儿平衡量表。结果:与对照组在三个研究阶段的结果相比,接受教育包的研究组在脑瘫知识和实践方面的改善具有高度统计学意义(P≤0.001),而对照组在三个研究阶段的结果显示差异不显著(分别为P=0.246和P=0.06)。结论针对照顾者的教育套餐除了对其子女的生活质量和功能平衡产生积极影响外,还对他们有关脑瘫的知识和实践产生了改善作用。建议持续为母亲们制定和实施有关护理脑瘫儿童的教育计划。
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Effects of Caregivers-Centered Package on Functional Balance and Activities of Daily Living in Children with Cerebral Palsy: Randomized Control Trial
Background: Children with cerebral palsy require interdisciplinary treatment due to their multifunctional deficits. Consequently, high levels of stress, worry, and dread of the unknown are common among caregivers. Therefore, understanding cerebral palsy is crucial for caregiver adjustment and role preparation. But there is a dearth of scientific data on the most effective way to teach caregivers. The aim of this trial was to evaluate the effects of caregivers-centered package on functional balance and activities of daily living in children with cerebral palsy. Design: A randomized controlled trial was implemented in out-patient clinic affiliated with Mansoura University Children’s Hospital. A total sample size of 80 caregivers and their children was recruited using a randomization technique. Data collection tools were four: a structured interview questionnaire sheet for caregivers’ knowledge regarding CP; caregivers’ care reporting sheet ; cerebral palsy quality of life scale for children ; and pediatric balance scale. Results: It was evident that the study group who received educational package demonstrated highly statistical improvements regarding cerebral palsy knowledge and practice (P≤0.001), compared to the control group results, which showed insignificant differences (P=0. 246and P=0.06, respectively) at the three study phases. Conclusion: The educational package for caregivers had an improving effect on their knowledge and practice regarding cerebral palsy, in addition to its positive effect on their children's quality of life and functional balance. Recommendation: Developing and implementing an educational initiative for mothers regarding care of their children with CP continuously.
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