自闭症谱系障碍护理教育:提高家长对自闭症谱系障碍的认识,改进他们照顾子女的方法

Eman Ghallab, Nagwa Hamad, Shadia Morsy, Yasmeen Shehata
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引用次数: 0

摘要

:背景:自闭症谱系障碍(ASD)儿童的家长是医疗系统不可或缺的组成部分,因为他们在为子女提供护理和支持方面发挥着重要作用。因此,实施有效的家长培训计划至关重要。因此,家长们对自己在照顾 ASD 患儿过程中应对挑战的能力感到自信。目的:本研究旨在确定使用图文并茂的小册子开展健康教育计划对有 ASD 儿童的家长的知识和实践的影响。设计:采用前测-后测的准实验研究设计。研究地点本研究在斯穆哈大学儿童专科医院和亚历山大主大学医院的精神科和神经科门诊进行。抽样:方便抽样:60 位家长,他们与患有 ASD 的孩子一起在上述医院就诊。工具:收集数据时使用了两种工具:工具 1:有 ASD 患儿的家长的知识访谈表,以及工具二:父母照顾患有 ASD 儿童的做法。结果:研究组 83.3%的家长在健康教育课后表现出良好的知识水平,总平均得分为(5.27±0.91)分,而对照组的总平均得分为(1.47±1.07)分,差异有统计学意义(P< 0.001*)。在护理实践方面,研究组 76.7% 的家长在健康教育课后表示满意,总平均得分(25.11±8.20)分,而对照组只有 3.3% 的家长表示满意(11.40±1.54)分,差异有统计学意义(P<0.001)。结论:本研究表明,精心设计的综合健康教育计划对家长的知识及其护理实践产生了重大的积极影响。建议:应为家长提供持续的健康教育和辅导计划,帮助他们照顾患有自闭症的儿童。
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Autism Spectrum Disorder Care Education: Improving Parents' Knowledge and Caregiving Practices for their Children
: Background: Parents of children with Autism Spectrum Disorder (ASD) are an integral component of the healthcare system as they have a substantial role in providing care and support for their children. Therefore, implementing effective parent training programs is of paramount importance. Hence, parents feel self-assured in their capacity to navigate challenges that come with caring for their children with ASD. Purpose: This study aimed to determine the effect of health education program using an illustrated booklet on knowledge and practice of parents who have children with ASD. Design: a quasi-experimental pretest-posttest study design was used. Settings: This study was conducted at the Psychiatric and Neurological Outpatient Clinics of both Smouha Specialized University Hospital for Children as well as the Main University Hospital in Alexandria. Sampling: A convenient sample of 60 parents who were attending with their children having ASD in the previously mentioned settings. Instruments: Two instruments were used for data collection; Instrument one: Knowledge of parents having children with ASD interview scheduled sheet, and Instrument two: Parents' caregiving practices for their children with ASD. Results: revealed that 83.3% of parents of the study group exhibited good level of knowledge following the health education sessions with total mean score (5.27±0.91) compared to none of the control group (1.47±1.07) and the difference was statistically significant (p< 0.001*). Regarding caregiving practices, 76.7% of parents in the study group displayed a satisfactory level after the health education sessions with total mean score (25.11±8.20) compared to only 3.3% of the control group (11.40±1.54) with statistically significant difference (p <0.001). Conclusion: this study demonstrated the substantial positive impact of the well-designed comprehensive health education program on parents’ knowledge, and subsequently their caregiving practices. Recommendations: Continuous health education and counseling programs should be launched for parents about the care of their children with ASD.
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