阿根廷一组脑瘫儿童的功能概况:首次全国性研究的初步数据。

Pub Date : 2024-04-25 DOI:10.5546/aap.2023-10257.eng
L. J. Escobar, V. Schiariti, Mercedes Ruiz Brunner, Eduardo Cuestas, Mariana Melaragno, Agustina Fabbro, María Úrsula Ivancic, Laura Mammana, Geraldina Morganti, Carolina Ayllon, Valeria Vera, Silvana Menéndez, Domínguez Federico Ángel, Alejandra Benito, Capone Elisabeth, Cieri Ana, Laura Condinanzi, Sandra Schenfelt, Sonia Spiazzi, Mayra Rossetti, Mailen Cernadas, Roxana Ramírez, Cielo Frangi, Carolina Zinni, Cecilia Lucentini, Jackie Ducoté, Verónica Parareda, Juan Zamora, Mariana Stoisa
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引用次数: 0

摘要

脑性瘫痪(CP)影响身体姿势和动作协调,是造成儿童严重残疾的最常见原因。对 CP 的诊断并不能说明一个人的功能或与环境的互动情况。因此,在诊断的基础上,还应该使用基于世界卫生组织《国际功能、残疾和健康分类》(ICF)提出的生物-心理-社会模型的工具,对患者的功能进行描述。本报告介绍了在阿根廷进行的一项多中心研究的初步数据,该研究旨在对患有脊柱侧弯症的儿童和青少年的功能特征描述进行标准化。这些数据显示,参与者在睡眠功能、语言心理功能、视觉功能和一些环境因素方面具有一定的能力。他们在保持体位、行走和如厕等方面表现出明显的困难。
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Profiles of functioning of a group of children with cerebral palsy in Argentina: Preliminary data from the first national study.
Cerebral palsy (CP) affects body posture and movement coordination and is the most common cause of severe disability in the pediatric population. The diagnosis of CP is not a description of a person's functioning or interaction with their environment. Therefore, the diagnosis should be complemented with a description of functioning, using tools based on the biopsychosocial model proposed by the World Health Organization's International Classification of Functioning, Disability and Health (ICF). This report describes the preliminary data from a multicenter study conducted in Argentina with the aim of standardizing the description of the profiles of functioning of children and adolescents with CP. These data showed that the participants had some skills in sleep functions, mental functions of language, seeing functions, and in some environmental factors. They showed significant difficulties in categories such as maintaining body position, walking, and toileting.
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