在没有专科医生的地区,由患者及其初级神经科医生参与的专家远程会诊可用于多发性硬化症的治疗

Q4 Immunology and Microbiology Clinical and Experimental Neuroimmunology Pub Date : 2024-04-10 DOI:10.1111/cen3.12787
Y. Miyazaki, S. Ura, Kazuhiro Horiuchi, Takeshi Matsuoka, Hideki Houzen, K. Tsuzaka, Yuichi Makino, Manami Koshida, G. Oyama, Chika Sato, R. Naganuma, I. Amino, S. Akimoto, M. Niino, N. Minami, E. Takahashi, Susumu Ota, Nobutaka Hattori, I. Yabe, S. Kikuchi
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引用次数: 0

摘要

本研究旨在描述我们的远程会诊系统在没有专科医生的地区管理多发性硬化症(MS)的实用性。2023 年 5 月至 12 月期间,我们对 11 名多发性硬化症患者及其初级神经科医生进行了横断面问卷调查。在日本北海道的四家地区核心医院中,一家中心医院的多发性硬化症专家与患者及其初级神经科医生进行了实时视频会议。患者及其初级神经科医生填写了调查问卷,以评估远程会诊系统的实用性。患者及其初级神经科医生对远程会诊普遍表示满意,并表示愿意继续使用该系统。患者和他们的神经科主治医师对远程会诊普遍表示满意,并表示愿意继续使用该系统,尤其是减轻了患者到遥远的多发性硬化症专科门诊就诊的负担,得到了患者的高度评价。此外,患者对初级神经科医生提供的护理和治疗的满意度也很高。初级神经科医生认为该系统提高了他们对多发性硬化症管理的认识。本研究表明,我们的多发性硬化症专家远程会诊系统减轻了患者到遥远的多发性硬化症专科门诊就诊的负担,并提高了基层神经科医生对多发性硬化症治疗的认识。此外,该系统还增进了患者与基层神经科医生之间的信任,这些方面综合起来可在没有多发性硬化症专科医生的地区实现独立、可持续的多发性硬化症管理。
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Expert teleconsultation involving patients and their primary neurologists for the management of multiple sclerosis in regions without specialists
This study aimed to describe the usefulness of our teleconsultation system for managing multiple sclerosis (MS) in regions without specialists.A cross‐sectional questionnaire survey involving 11 MS patients and their primary neurologists was carried out between May and December 2023. Real‐time video conferences were conducted between an MS specialist at a hub hospital and patients with their primary neurologists at one of the four regional core hospitals in Hokkaido, Japan. Patients and their primary neurologists completed questionnaires to evaluate the usefulness of the teleconsultation system.The patients and their primary neurologists were generally satisfied with the teleconsultations and expressed willingness to continue using the system. In particular, alleviating the burden of visiting distant MS‐specialized clinics was highly appreciated by patients. In addition, patients gave high scores for questions regarding increased satisfaction with the primary neurologists' care and the treatments they offered. The primary neurologists thought the system enhanced their knowledge of MS management. However, they did not think that the system could ease their burden for managing MS patients because of challenges in time allocation and scheduling for teleconsultation sessions.The present study suggested that our expert teleconsultation system for MS reduces the burden on patients of visiting distant MS‐specialized clinics, and enhances knowledge of MS management for the primary neurologists. It also promotes trust between patients and their primary neurologists, and taken together, these aspects could collectively lead to independent and sustainable MS management in regions without MS specialists.
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来源期刊
Clinical and Experimental Neuroimmunology
Clinical and Experimental Neuroimmunology Immunology and Microbiology-Immunology and Microbiology (miscellaneous)
CiteScore
1.60
自引率
0.00%
发文量
52
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