在跨学科人口健康研究联合会中培养社区参与能力

Aimee James, T. Coyne-Beasley, Shayna D. Cunningham, Ayah El-Farmawi, Bernard Harlow, L. Kane Low, Heather Klusaritz, T. Lipman, Julia Maki, Jesse N. Nodora, Melissa Simon, J. Hebert-Beirne
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引用次数: 0

摘要

社区参与已被美国国立卫生研究院列为研究重点,学者们呼吁将社区参与作为解决科学中的种族主义和公平问题的一种方法。强有力的社区参与式研究可以提高研究质量,增加对传统上被边缘化人群的包容,扩大研究结果对现实生活的影响,对未充分探索的研究课题尤其有价值。本文旨在介绍社区参与多机构人口健康研究联盟的经验教训和最佳实践。我们介绍了如何利用分阶段、分步骤的流程来建立和嵌入多层次的社区参与研究方法,从而为在联盟中开展社区参与研究活动奠定基础。我们的分阶段发展旨在促进 (a) 联合体成员对社区参与的认识,(b) 建立团结和联盟,以及 (c) 启动长期参与,以实现有意义的研究成果转化。我们的阶梯式进程包括战略规划、造势、将参与制度化为联盟的基础设施,以及制定、实施和评估计划。我们从非正式、一次性的社区互动转变为系统化、正规化的能力建设互惠参与。我们与大家分享了我们遇到的障碍和问题,并为其他大型研究联盟提出了建议,包括投入时间来建立社区参与能力、承认并利用相关社区的优势、确保社区参与有一个强大的问责基础设施,以及将工作建立在反种族主义原则的基础之上。
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Building Community Engagement Capacity in a Transdisciplinary Population Health Research Consortium
Community engagement has been named a research priority by the National Institutes of Health, and scholars are calling for community engagement as an approach to address racism and equity in science. Robust community-engaged research can improve research quality, increase inclusion of traditionally marginalized populations, broaden the impact of findings on real-life situations, and is particularly valuable for underexplored research topics. The goal of this paper is to describe lessons learned and best practices that emerged from community engagement in a multi-institution population health research consortium. We describe how a foundation was laid to enable community-engaged research activities in the consortium, using a staged and stepped process to build and embed multi-level community-engaged research approaches. We staged our development to facilitate (a) awareness of community engagement among consortium members, (b) the building of solidarity and alliances, and (c) the initiation of long-term engagement to allow for meaningful research translation. Our stepped process involved strategic planning; building momentum; institutionalizing engagement into the consortium infrastructure; and developing, implementing, and evaluating a plan. We moved from informal, one-time community interactions to systematic, formalized, capacity-building reciprocal engagement. We share our speed bumps and troubleshooting that inform our recommendations for other large research consortia—including investing the time it takes to build up community engagement capacity, acknowledging and drawing on strengths of the communities of interest, assuring a strong infrastructure of accountability for community engagement, and grounding the work in anti-racist principles.  
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